My first post.
I am 66 had had a Stem Cell transplant in 2007 and a second Stem Cell transplant in 2013. Both proved difficult to recover from but I managed to get back to a pretty good level of health and fitness and resumed a fairly active life style including hiking, gym, cricket, badminton and cycling so I Know I have been lucky.
In Jan 2019 I relapsed again and was put non a combination of Lenalidomide (Revlimid), Ixazumib (Ninlaro) and the dreaded Dexamethasome for six months. Blood counts recovered and all other tests seemed good. 6 months of Dex definitely made me feel very ill and I was not sleeping at all for 4/5 nights after taking it.
Since Sept I’ve just been on the Lenalidomide and Ixazomib which I am tolerating well and feel pretty good and I am back playing badminton and back in the gym. I can see that I am operating at about 50% from before.
Is anyone else going through this combination? How are you coping? Is it effective, long term, without the Dex? How long can I expect this treatment to work for?
aburke53 5 years ago.