[b]The aim of the research is to ask patients, their carers and their consultants about the impact of living with myeloma-related pain and to establish if there are any discrepancies in perception between those who are directly impacted by pain and those who treat and manage it.[/b]
Myeloma UK has contracted an expert independent research company, Baccus Consulting, to work with us to develop a questionnaire and to conduct the researchBaccus have many years experience in working with other charities and healthcare organisations and they fully understand the complexities of conducting this type of research.
[url=http://www.smart-survey.co.uk/v.asp?i=31124xctyu][b]>> Click here to take our Online Survey[/b][/url]
If the results of the surveys do show a discrepancy then we will use this information to feed directly into our work programme aimed at improving the way in which myeloma is treated and managed and the extent to which healthcare professionals are aware of and understand patient / family perspectives. The results will also help us to develop patient-centred information for patients, their families and their healthcare team and ultimately feed into the Government?s National Cancer Survivorship Initiative.
Please complete the by [b]Friday 8 April 2011[/b]. The questionnaire should take no more than ten minutes to complete.
It is very important that you complete your questionnaire individually so please do not confer your answers with your partner or a family member. All questionnaires will be anonymous so please be as open and honest as you can in your answers. Once the research has been completed the questionnaires will be securely disposed of.
If you have any questions or queries about the questionnaire, please contact Anne-Marie Barry at Baccus on 0131 669 7066 or by email ambarry@baccus.uk.com
We really appreciate your help with this research. Thank you.
Kind regards
Lois Lobban
Healthcare Professional Programmes