London Infoday

This topic contains 12 replies, has 9 voices, and was last updated by  eve 13 years, 1 month ago.

Viewing 13 posts - 1 through 13 (of 13 total)
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  • #91521

    Debs
    Participant

    Hi all

    Just wondered if anyone else was going to be at this?

    I'm hoping to get there (assuming I don't have post-transplant glitch as I do occassionally!) and just wondered if I should look out for anyone to say hello to 🙂

    I'll be the baldie (in fact I'll change my profile pic so that you can spot me!)

    Debs x

    #91528

    Debs
    Participant

    Hmm, can't seem to change my picture even though it says I have done! Oh well…look out for the bald head instead…..

    #91531

    Min
    Participant

    I have to say Debs you look fab with your bald head, cant remember the picture that preceeded this new one but hope you feel as well as you look
    love
    Min

    #91529

    BADGER
    Participant

    hi Debs

    Geoff and I will be there we will look out for you
    Love Jo:-)

    #91530

    tom
    Participant

    Well you know I cant make it Debs but you all have a great time 😎 and not too much drink this time girls

    Tom xxx

    #91522

    Debs
    Participant

    Hi Jo,
    Great….will look out for you too!!
    Debs x

    #91523

    Gill
    Participant

    Debs I would know you anywhere hair or not.

    Just don't stop smiling if you want to be recognised. Hope you are feeling well

    love from Gill xxxx

    #91524

    scott9
    Participant

    I would indeed have been there, but it is the mother in law's 80th birthday gathering in Bournemouth. Please give Prof Schey my regards as he is the specialist who looks after me. I hope there is some good news re drug trials etc.

    All the best

    Scott

    #91526

    Debs
    Participant

    THanks Gill – not sure if it's good or bad that I'd be recognised anywhere!!
    Someone the other day said they wouldn't want to bump into me on the street – maybe I wasn't smiling then!!
    Doing ok thanks….waiting for 3 month post-SCT results on Tuesday so a bit nervous in case of relapse, but keeping busy organising my tabletop sale, and have also started to organise a ball for next November!! Much better than dwelling on the unknown!
    Debs x

    #91525

    Debs
    Participant

    Hi Scott
    Have a good party on Saturday!!
    Will try to pass on best, but you know what these consultants can be like….very elusive!!
    Take care
    Debs x

    #91532

    Nadine
    Participant

    🙂 Hi Debs!,

    I'll be there with mum-will look out for you and have a catch up.
    Take Care
    Nadine
    x

    #91527

    KeithH17
    Participant

    Hi Debs hope you enjoy the London info meeting and that you learn alot from it.
    I went to it in 2008 after my first sct and stayed a couple of nights at the White House Hotel which is just around the corner from the RCOP where the meeting was being held.
    My passion is Photography and I took some shots around London but it rained most of the time so the London eye was off the menue.
    The info-day was excellent and I gained alot of useful information from it in particular with regards to new treatments coming down the line.
    I would have loved to have met you there Debs but unfortunately I can't make it this time but hopefully another time we will.
    I see my Consultant 27th Oct for a review appointment to see how things are going.
    I still itch like h*ll but the swelling on my arm is starting to settle down at long last.
    My PP's are 2.55 and apart from the itching I'm ok.
    I'm sure your appointment with the Doctor will check out ok and that you will continue to go from strength to strength.

    Take care Debs and enjoy the meet.

    Keith.

    #91533

    eve
    Participant

    Hi Debs
    We will not be making it tomorrow,left it till last minute,because it means a stay up there or 160 mile around trip,from the coast in Kent and Slim on first week of 4 cycle Velcade.
    Been to the hospital this morning,for bloods,and he is just not himself,so tomorrow is out,was looking forward to meeting everybody,but either way with a dog would have been difficult,and now Slim not feeling right,means i will not leave him to go alone,so may be the next one in London,as that is the nearest for us.:-(
    Hope you all have a nice day and let us know ,how it goes Love Eve:-)

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