Maintenance ?

This topic contains 2 replies, has 2 voices, and was last updated by  susie 7 years ago.

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  • 15th November 2017 at 6:42 pm #135943

    susie
    Participant

    Does anyone know if any maintenance is allowed (by NICE that is ) ?

    I’m at first relapse and about to start cycle 5 of Velcade. Melphalan, and Pred. After two cycles my PP’s dropped from 54 to 28 and are now 15. Responce is certainly slowing down. The consultant told me today its unlikely to drop much further and next remission will not last as long as the first one. Very depressing.

    Best wishes

    susie

    15th November 2017 at 9:22 pm #135945

    docmike
    Participant

    Dear Susie
    Not that I am aware of but still investigating .Unless in a trial or in an area where they ignore nice maintenance seems unavailable and the long term cost make this very unlikely despite evidence from a uk trial myeloma X1 . This has to change but how?
    Michael

    16th November 2017 at 7:38 pm #135973

    susie
    Participant

    Thanks for your reply Michael. I so agree it has to change but haven’t a clue how to achieve it. I get angry when I think about NICE, who are interested only in the financial cost in, it appears, the short term. For example in the case of ixazomib, an oral drug, do they consider the monies saved in reduced hospital appointments.

    All beyond me.

    susie

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