[briancParticipant]

Hi all

I Am due to have my SCT any day and at a meeting with the consultant this week he mentioned that I would need to be on antibiotics for a year.

Can someone tell me what medication is usually taken when you get home if you are in complete remission

Thanks

Brian

 

[tonyfParticipant]

Hi Brian, following my SCT I was on antibiotics for three months. Then I was stopped. I opted not to go on maintenance drugs and was completely free of drugs for about 26/27 months.
just to cheer you up a bit has your consultant told you that after SCT you will have to have your baby injections again! I never thought about that but the chemo prior to SCT wipes out all immunity.
Wishing you best of luck, hope all goes well.
Regards
Tony F

[briancParticipant]

Thanks for the Info Tony.

What you have is more in line with what I expected.

I did know about the ‘old’ vaccines like measles needing to be redone. I think that chicken pox or shingles seems to be the main concern.

All the best

Brian

[christaylorParticipant]

Hi Brian, first good luck with the SCT, I hope it all goes through soon and with no complications. I had my SCT in March and slowly reducing the various Meds that I was on once my blood levels stablelised the last tablets I am on is Aciclovir which the Consultant said would be on it for 6 months. I get my post 100 days result next week so at this time I am not sure if I am in remission or at what level. So the medication I expect will depend on your blood levels getting back to something like normal however long that takes. On the bit about inoculations and having them re done the Consultant told me that if you use your own stem cells then it’s not required, only if you have had donor stem cells, which I suppose makes sense. I hope this is of some help, once again good luck.

CT

[rebeccaRParticipant]

Hi – I was on various pills that stopped after a month or so and kept up the antibiotics for 3 months only. I was told I had to keep the antibiotics for the full 3 months as the melphalan destroys the lining of the lungs so you are susceptible to chest infections. Not had one yet now 18 months post SCT – fingers crossed. RE vaccinations some have them again after a year but I have not – as my little hospital never gets a response from Leeds where I Had the SCT. When I was in Leeds, however, I remember the consultant debating that your stem cells remember so you are not necessarily totally immune free from things. Anyway, have lost interest in keep asking so none for me. Perhaps a year is a trial at your hospital? they are so different. I asked for ice to suck – as everyone advises – at SCt and Leeds didn’t have any. They had run out but was told they had only recently introduced it as in the “older” days ice was considered dirty? Anyway, as with everything I think you are either predisposed to mputh problems or not. I had no ice and no problems – again I guess its a similar path but how we react is very individual. Bet wishes

Rebecca

[briancParticipant]

Chris and Rebecca

Thanks to both of you for you information.

I think that throughout the whole Myeloma every time I think I have things clear in my head it then seems to change on the basis that “everyone’s myeloma is different”.

Maybe I just need to wait and see what happens and how I react to the transplant and hope for the best

 

Brian

[CarolsymonsParticipant]

I was told to take antibiotics and acyclovir for 12 months after transplant, but stopped them at 9 months as I had not had any infections and specialist agreed. Re the immunisation debate….in Australia they recommended a full set of re vaccinations wanting to give me 5 in one day! As there seemed to be controversy over whether to have them or not I asked for a blood test to check immunity levels. That came back saying I had no immunity to tetanus, whooping cough, diptheria, etc etc so I gave in and had the immunisations but spread them out over several months. I rejected polio and hepatitis, as I believe I am low risk for them and will not have the measles vaccine (which they offer 2 years after transplant) in case something more comes from the research on that. I did choose meningococcal vaccinations as I have a 2 year old grand daughter…..not sure they are necessary unless you have contact with younger children or teenagers.

Carol

[briancParticipant]

Hi Carol

Many thanks for your information. I think I will also try and take your approach of seeing what is best for me at the time rather than just following the text book.

Best wishes

Brian

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