Hi

I had a SCT in 2015 and one of the things which I found hard to deal with was a delay in getting it done.

I had a date to go to Southampton General but due to the lack of beds my admission was put off a few times and I think I actually went in about 3 weeks later. If I had known in advance that this was a possibility it would have been OK but…[Read more]

Hi

I paid about £200 for annual cover with Amex.

this was for both my wife and myself, and wasn’t their cheapest option

Apart from the Myeloma (which is in remission) I am in good health. I didn’t ask for cruise cover but £1000 seems a lot of money.

Good hunting

Brian

I wasn’t asked about terminal Prognosis. but I would advise telling them everything up front just in case you need to claim. the way medical costs can mount up you wouldn’t want to give them a get out

Brian

I have just got Annual Cover from American Express including cover for my post SCT Myelome.

The cost of annual cover wasn’t that much more than for a single trip but with any insurance you only find out if it was a good buy afterwards.

Brian

Hi

I had SCT in Southampton in July this year.

Everything went as planned apart from the actual admission day.

The harvesting session went well but I was very sore prior to the Harvest taking place.

They give you something to help stimulate stem cell production ( I’m sorry but it seems like I have had so many drugs I can’t remember names) in…[Read more]

Hi liz

thanks for your reply. It is great to know that everything went to plan and you can now move on.

I am in Southampton general on transplant day plus 3.

so far all is good just very tired

Brian

Hi to everyone. I’m sending this from the ward in Southampton general where I was admitted yesterday.

Everything happened quite quickly, confirmation that the bed was available about midday and I was in by 3 o’clock.

I have had my large dose of methaphalan about lunch time and apart from lots of visits to the bathroom all is well.

stem cells…[Read more]

Hi Carol

Many thanks for your information. I think I will also try and take your approach of seeing what is best for me at the time rather than just following the text book.

Best wishes

Brian

Hi again Rebecca

Southampton where I am due to have my transplant didn’t seem too bothered about me working and having the Hickman line. Portsmouth where my treatment is based were quite upset about me going to work. I’m not too sure about the difference between looking at a screen at work or looking at a screen at home but I guess there is less…[Read more]

Chris and Rebecca

Thanks to both of you for you information.

I think that throughout the whole Myeloma every time I think I have things clear in my head it then seems to change on the basis that “everyone’s myeloma is different”.

Maybe I just need to wait and see what happens and how I react to the transplant and hope for the best

Brian

Thanks for the Info Tony.

What you have is more in line with what I expected.

I did know about the ‘old’ vaccines like measles needing to be redone. I think that chicken pox or shingles seems to be the main concern.

All the best

Brian

Thanks for the message- as you said sometimes you have to remind yourself that progress is still being made.

I have now had my Hickman line fitted which is a bit of a pain

The nurses have advised thai  I have to stop going to work because of the risk of infection, I think I was ready for time off after the transplant but being off before may…[Read more]

Thanks for your note Graeme.

I think I was just a bit frustrated as everything had gone well before now.

I feel a bit more positive now and will make sure there is a stock of jelly!!

Brian

Thanks Rebecca, I’m not sure that I would cope with phoning every day for 8 weeks without going mad.

As you say at least I’m in remission so nothing is getting any worse and there will always be someone who need the treatment more urgently.

Fingers crossed that the delay is not too long and than the sun keeps shining .

Brian