[sk1gilletteParticipant]

• Hi,I was recently Diagnosed with MGUS.Does this convert to MM

[susieParticipant]

Hi there. MGUS doesn’t always become active myeloma, but a few do. It took 3 years for it to happen to me. Most people go many years as MGUS if it progresses at all.

So don’t be worried. You will be monitored regularly for any disease progression.

Best wishes

susie

[graham-cParticipant]

I’ve been MGUS for 5/6 years and nowadays I get blood tests every 4/6 months with ‘virtual appointments’ which means that I get basic results by phone. I’ve had the odd small spike but overall I know that my results are low level and don’t merit more attention. I am happy with that and am thankful that I have been fortunate. I’m being monitored and can’t ask for more.

Having a diagnosis without receiving treatment can play with your mind, but actually it’s a good thing. If and when my time comes I doubt that treatment will be nice and it’ll be a sign that the illness is progressing.

Instead of dreading results I look forward to learning that I don’t have anything to worry about.

[Author]

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