[jackie123Participant]

Hi,I'm new to the forum. Was diagnosed with MM in 1995,so why don't I feel grateful that I'm still here?
Jackie

[tomParticipant]

Hi Jackie

You know I cant answer that for you Jackie, but what I can say is A warm welcome to our (now your) Forum, am sure you will get the support and advice that you want as you wander along the path to remission with us lot, its a great bunch of folk we have all at different stages in treatment.

What treatment have you had so far Jackie and are you in remission ??
I was diagnosed in 2009 had CTD as a frontline then SCT in December 2009 and am now pleased to say in remission and drug free.

As I was writing this I had a thought RE your post ::"so why don't I feel grateful that I'm still here? " well it came to me during my first year of diagnosis I went for counselling as I might have been a iccle bit fed up (depressed I think??) it worked wonders for me, have you had any or thought about it??? it just might work.

Keep in touch Jackie

Love Tom Onwards and Upwards xx

[mhnevillParticipant]

Hi Jackie

Do read Dawn's post in "General" on coping with emotional effects of MM and follow link to Mindfulness. It is an interesting idea as I have been following it.

It easy to allow the thought of MM control all your reactions to life always waiting for what might be next. But let's face it no one, even those without MM don't know how long they have left of life. All any of us is today. The more I can live like this the better life is.

Do hope life can get better for you. How are things in the rest of your life? Perhaps the core of the problem isn't the MM but something else. Be kind to yourself. After all, treatments for MM aren't a walk in the Park. What have you had?

Very best wishes.

Mavis x

[PerkymiteParticipant]

So, why have you suddenly decided to join this forum?

regards

David

[dickbParticipant]

I had depression many years ago. My Counselor was great, she told me that depression is a consequence of many factors not just one, evry time you have a stressful event, some of it stays with you. It doesn't completely dissipate afterwards. If you have a number of stressful events over a three year period then the accumulation can tip you over, one very small thing is enough. What tipped me over last time was the dishwasher, I hadn't closed the door properly hence in the morning everything was still dirty. That was it, downward spiral from there on. So Jackie, perhaps the problem is not the MM but something else in your life. As many have said before, we can't help having MM, we should not feel guilty about it, it is for us a fact of life. What we can do is not let it dominate our lives. Don't feel 'grateful' that you are still here, make something of the time that you are here that gives you pleasure and makes life better.

[eveParticipant]

Hi Jackie

I saw this posting,and thought I am not going to waste my time answering it,but saying that I changed my mind,because you do need help,what ever floats your boat as people have suggested counselling !!! May be you need to look at your life!!! Magic little pill!! I take some every now and then when lif gets on top of me,no shame in it,keeps me going!!!

You should sit down and write every thing you are grateful for!!!

I am so grateful I have had 33 years with Slim,even if he is grumpy at times
I am grateful I have three lovely girls who I am so proud of
I am grateful we managed to get out to the woods and smell the bluebells as Slim has been in hospital seriously ill for the last couple of years.

I could go on,but I am sure you get the picture

Lock the MM in a cupboard,and decide what you want in life.Eve

[mhnevillParticipant]

Hi Jackie, again!

Piggy backing ob Eve's posting, have you come across Jet's Blog? In it she suggests listing 50 things you want to do before you die. I haven't been able to list 50 yet, but am working on the ones I have. It is a way of focussing the mind and gives you something to work towards.

Best wishes.

Mavis

[jackie123Participant]

Hi David, Have only just found out the forum existed. Jackie

[jackie123Participant]

That sounds like a really good idea! Might just try it. Thanks, Jackie

[eveParticipant]

Hi Jackie

Well did you take any of are advice!!!!

Well we all know Myeloma is a beast,and some how patients and carers,have to function and live with what ever time is left,it may be years or not so long ,but living the best way,and getting all you can out of it is important.

How come it has taken you so long to find this site,?
I hope you will keep on posting,you can get a lot of good information,and give a lot of information and help people going through the same medication as your self,I noticed you have been on Revilimid for a couple of years,that is an achievement in its self,2 SCT that takes some going,do you realise how much you have to offer to people on here??.Eve

[jackie123Participant]

After reading everyone's advice I'm feeling a lot more positive, thanks.
Took me so long to find this site because I never knew it existed. Only found it when I wanted to look at the other treatments that were being used, then I found the discussion page. Glad I did.
The kind words in your message, Eve, really brightened up my day.
Jackie.

[CarolsymonsParticipant]

Hi Jackie. You are a myeloma WARRIOR! It is people like you who give us newbies hope….18 years…most of us can only dream of a lifespan like that…you are one fortunate lady.

Carol

[VickiParticipant]

Hey Jackie

You are a shinning example. 🙂 but hey the journey is not always easy so don't be sorry for feeling sad sometimes….who really wouldn't but you are doing great and a real hope for those with mm or us supporters 🙂

Vicki and Colin x

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