Mother in Law starting Velcade today

This topic contains 4 replies, has 5 voices, and was last updated by  JoanneK 12 years, 1 month ago.

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  • #100593

    Balders
    Participant

    Hi All.

    My MiL has been in hospital for 3 weeks now, having gone in for an ECG for heart palpitations. Blood tests revealed she had kidney failure (down to 10% function)and sewas admitted. Further blood test releaved Light MM. The last three weeks have been spent trying to balance the treatments for her kidneys, heart and the MM. She has had a couple of heart attacks whilst in hospital and spent a night in ITU last week. But then on Sunday felt better than she has for a week!

    On a positive note they have now put her permanent dialysis line in and she is having dialysis 3 times a week and she will be starting Velcade today. To say she is apprehensive would be an understatement. The haematology people gave her literature regarding the Velcade, which included a long list of side effects and she has become very concerned and pre-occupied by it. We are trying to convince her to just take things as they come and the hospital has to let her know all the possible side effects.

    The only outstanding issue now is getting her heart problems resolved as they are reoccuring. She will hopefully be having an angiogram next week, although she may have to be taken to a different hospital for it. Once they know what the heart problem is and how to treat it she should be coming home.

    She is 65 and prior to this had been a very active lady and this has knocked her, so we desperately want to see her on the road to recovery. Unfortunately, due to her underlying health issues she is not eligable for SCT but they are positive that the Velcade will improve things with the MM and therefore with her kidneys and heart.

    Reading all your posts but your experiences of treatment is very helpful.

    Thank you.
    Pia

    #100594

    tom
    Participant

    Hi Pia

    And a warm welcome to the site, sorry to hear about your Mum am sorry I cant help with the treatment as all I have had was CTD then SCT.

    Just wanted to wish your Mum well in her road to remission.

    Love
    Tom "Onwards and Upwards" xx

    #100595

    PatG
    Participant

    Hi Pia,

    So sorry to hear about your MiL. I know from reading on here that everyone reacts to the drugs differently and hope that she tolerates Velcade as well as I am at the moment. I had the second injection today and must say that unlike Tuesday, I had to have a little sleep when I got home and I do feel a bit 'weird', but have just put some rice on to cook to go with the Jambalaya I threw in the slow cooker this morning so I must be recovering now. My kidneys are at 50% function so nowhere near your MiL, but the docs all tell me the kidneys are really good at regenerating. Let's hope this is the case here:-) I wish you both all good things.
    Love and hugs
    Pat x

    #100596

    Vicki
    Participant

    Hi Pia,

    Welcome to the forum! You will find so much information, care and support from friends on this site. No question too small. Best wishes to your mother in law, and success from the treatment. It's a hard, individual road but one worth taking xx

    Vicki and Colin x

    #100597

    JoanneK
    Participant

    Hi pia… Just wanted to say hello.

    I joined this forum a month or so ago.. I've read posts since my dad was diagnosed last December and finally plucked up the courage to join! I find it extremely comforting and hope you do too.

    My dad is going to start velcade treatment in the next couple of weeks and we have everything crossed that it keeps this myeloma at bay.

    My very best wishes to your mum in law and all the family, and hope she responds well.

    Take care

    Joanne xx

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