Hi everyone.. I've not posted since the end of last year when my dad became very poorly with infections however I check in regularly to see how everyone getting on! Dad is doing really well again now and is about to start his fourth cycle of velcade. He is tolerating it well so he is able to get out and about and do the things he wants to do! It's…[Read more]

Hi lorna and dai…

Thank you both very much for your replies, they are very helpful and much appreciated!! We just haven't encountered the dropping platelets before now.

Dad has been told today that he has pneumonia.. Poor dad, I just wish he could get fit enough to start his next treatment. We are going two steps forward and three back,…[Read more]

Hi Michael.. Sorry to hear your wife is suffering with myeloma and I hope you get lots of help from this forum. My dad is in a similar situation to Josephine.. His first course of treatment hasn't worked so we are back to the beginning and he is going to start velcade! Unfortunately he is suffering with infection after infection at the moment and…[Read more]

Hi Emma… Sorry to hear the news about your mum. It's my dad who has myeloma and its hard to take in isn't it.

It took me quite a few months to pluck up courage to join this forum but I'm so glad I did because everyone is so friendly and offer such a lot of advice and a wealth of experience! Don't hesitate to come on and 'let off steam', I…[Read more]

Hi vicki and Colin… What great news.. Wishing you all the very best for the next stage.

Take good care of yourselves

Joanne xx

Dear eve and slim…

What a lovely post that has given me lots of reassurances for my dad. So glad to hear your good news… Here's to many more years and hope you both enjoy the wonderful trips you are planning.

Take care

Joanne xx

Hi vicki and Colin…

Just wanted to wish you well with harvesting and sct…fingers crossed for you!

Take care

Joanne xx

Hello all.. I've finally got my head together to post an update again.. What a long hard fortnight!!!

My dad has come home from hospital today thank goodness, it felt like it was never ending. He ended up with a strain of pneumonia, just what he could have done without bless him. He is feeling much better in himself though pretty weary and…[Read more]

Hi pia… Just wanted to say hello.

I joined this forum a month or so ago.. I've read posts since my dad was diagnosed last December and finally plucked up the courage to join! I find it extremely comforting and hope you do too.

My dad is going to start velcade treatment in the next couple of weeks and we have everything crossed that it…[Read more]

Hi Megan.. Nice to 'meet' you and thank you for replying.

I hope your husband Is responding well with his treatment and glad his side effects aren't too bad,

I wish we could get this temperature and infection of dads under control then we can start with the velcade. He has been moved to the high dependency unit this afternoon for more oxygen…[Read more]

Hi Tom.. Thanks very much, I'm sure too that all will settle, it just doesn't feel like it sometimes does it?

Hope u have a good weekend

Joanne xx

Hello everyone

I am feeling pretty miserable tonight and just thought I might put it into words.. Might help so hope you don't mind?!

Dad still in hospital and feeling pretty poorly! His temperature just won't go down and it worries me!! He also has oxygen on and has lost his appetite! On the up side his platelets and blood levels are pretty…[Read more]

Hi Chris

Great news on your harvest!! Fingers crossed for everything going smoothly for the next stage.

Take care

Joanne x

Hi all…

Ok so not great news from me today!! Dad been in hospital since Saturday and harvest is a non starter again today! We think he is still suffering from after effects of chemo last week. His platelets have dropped so having both platelet and blood transfusions at mo! He has also had temp but think that's settled now!

No idea where…[Read more]

Hello all and thank you for replying to me…

Dad had an appointment with his doc yesterday and was told his myeloma was active again so we have everything crossed that the injections get these cells boosted!! Mum and dad seemed pretty calm about the whole thing but I just seem to fall apart!! Although vicki you are quite right each day is…[Read more]

Hi les…

I too am new to this forum. My dad was diagnosed last December and it has taken me a long time to take the plunge and join this forum but the people on here have given me great comfort by reading their posts and I hope you can get some strength from them too.

all the best with your treatment.

Joanne x

Hello…

Well after what was meant to be an overnight stay in hospital for chemo before injections, dad has come out today after three nights! He got a temperature and also his blood counts had dropped so needed transfusion! He is ok now though and home and starts injections tomorrow! It is all so unpredictable eh?

Hope everyone managing…[Read more]

Hi jacqui

Thank you for sharing your experiences with me and congratulations on returning to work.. I bet that was a great feeling and also to get some kind of normality back?

I do wish I wasn't such a worrier I seem to have sooo much whizzing round my head!!! I just want to get on with it but I realise from Colin's experiences that this…[Read more]

Hi.. I am new to this forum but just wanted to say congratulations on your achievement and I found your link very interesting and it made me feel more positive…

I hope you continue to feel so well

Best wishes

Joanne x