[richie2468Participant]

Hi,

My mother has recently been diagnosed, probably about 3 weeks ago, and it has come as a massive shock. She had a bad wrist and flu like symptoms and went to the doctors. After about 4 weeks she had an appointment with the doctor and wa told to go to hospital. Then it was a massive shock when she was told it was myeloma. She has been in hospital for a week and has had key hole surgery on her knee because it balloned up. She has also had 2 blood transfusions. Just trying to undertand it all! Is this a normal process and is it the start of a long road ahead?

Cheers.

[eveParticipant]

Hi Richie

Hello and welcome,I am a carer to my husband,and yes it is a massive shock when this all starts,but as time goes on your mum and you will reach an acceptance that she has Myeloma.:-S

There is no normal process,its a illness that is very individual and often starts differently for lots of people.

May I advice you to get in touch with the Myeloma nurse Ellen or Maggie phone up speak to them,they will send you lots of booklets ,at first it will seem hard to take in all the medical terms,but in time it will become the norm,anything you do not understand this friendly bunch on here can help you with,patients carers and family,they are all on this site.

It is a roller coaster journey,with lots of highs and lows depending were you are on it,my husband is 2 1/2 years down the line.some people are years down the line,:-P

its not all doom and gloom,your mum will need a lot of support,many people work as well as going through treatment,some find it easy,some have problems,keep your mum positive,Myeloma is incurable but treatable,if you look round the site,andy just got back from Greece,Babs from America,we went to NZ France and on a cruise so everything is doable.

I hope this gives you some insight.Eve

[mhnevillParticipant]

Hi Richie

Welcome from me too. Sorry you have had to join the Site on behalf of your Mother. It does sound like the end of the world when you are diagnosed with Myeloma, but as you go on, you realise all is not lost! There is a lot of help and support out there and there is hope.

While your Mother is in hospital they will no doubt decide on a treatment programme if she needs one straight away. Not everyone does. When you know what they plan there will be lots of people on here to explain and share experiences.

Things are so much more hopeful for Myeloma patients even than when I was diagnosed nearly three years ago. You don't say how old you're Mother is.. I am 68 yrs!

Very best wishes.

Mavis

[tomParticipant]

Hi Richie and Mum

A welcome from me also and I wish you and your Mum Luck on her road to remission, its not a walk in the park but it is doable 😀 I am sat here after being told Jan 2009 that I had MM, SCT done in dec 09 and am now Drug free 😎

All the best to you both

Tom Onwards and upwards x

[VickiParticipant]

Hi Richie

So sorry to hear of your mums diagnosis, my partner colin was diagnosed in October 2011 and has sct in November 2012. Now recovering slowly! It is all of real shock isn't it…..but please be strong. Medical treatment and the teams are coming on leaps and bounds in treating this condition.

We are a nice bunch on here so please ask away. As colins partner it has helped me as much as him 🙂

Vicki and Colin xx

[PerkymiteParticipant]

Hi Richie, Can I add my Welcome to the rest of the gang. The word you will no doubt pick up that they have used is "Doable". Everybody is different and Myeloma affects everybody differently BUT the broad path is the same and therefore you will find this site very, very helpful as your Mum moves through the treatment.

I was diagnosed in July 2009 and I am just renewing my passport. That is not to say I have not been through some rough times, I have, but – yes, you got it – it was doable. I am now on 2nd Line treatment and things are going well.

Kindest regards – vasbyte

David

[Author]

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