[bartyParticipant]

Good Morning
Ive already sent an e-mail to the nursing side of this site but would be interested in your thoughts. My step father has recently been diagnosed and is beeing treated with the 3 combination. He is suffering from fatigue and enemia. He has now got a mottled ferocious itchy rans on his legs and feet which he has been told to treat with antihistamine and E45. This has been ongoing for 4 days and no relief. toes are now starting to swell. As a typical man hes not asking the questions and due to Covid my mum cant get into his appointments with him.
Any advice?
Thanks in advance

Marie x

[mulberryParticipant]

Hi Marie

I had a nasty rash when I started to take lenalidomide as part of my triplet induction combination. That was very itchy and raised and quite alarming. I had to leave a longer gap between cycles but was OK to continue the drug at the same dosage and didnt get any further rashes. You havent specified which drugs your step father is on, but I’m presuming that one is an IMID, either Thalidomide or Lenalidomide (Revlimid)?
I suggest that he or your mother contacts his myeloma nurse to discuss this rash, its important for the team to know whats going on, especially when they are not seeing patients as much due to covid. Hopefully the rash will calm down with time and the creams suggested, but as it is getting worse, do ring again.

[bartyParticipant]

Thank you. Its nice to hear from someone who is living thro this also. Its more the fact its been ongoing for 4 days and theres been no relief and the added complication of his toes swelling. Initial thoughts from the consultant was it was viral, hence why I popped the enquiry on here.
And yes, he is on the combo of drugs you mentioned above.
Thank you again for your prompt response, my mum isnt too confident with the whole technology thing so I may pop the helpline number in her phone.
Kind regards
Marie x

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