Moving at last

This topic contains 36 replies, has 12 voices, and was last updated by  Helen 12 years, 8 months ago.

Viewing 15 posts - 16 through 30 (of 37 total)
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  • #92284

    DaiCro
    Participant

    Hi Eve & Slim,

    Time and distance… two strange phenomena. Last year must seem like a million miles away for you both… what with bloods and readings that contradicted each other, seemingly getting better but actually getting nowhere and Slim having to put up with strange and painful ways of measuring his mm…

    …but here you are on the cusp of his SCT… its actually happening and he is firmly back on track.8-)

    I really am as pleased as Punch… and all I can say is 'That's The Way To Do It!":-D

    My best wishes, prayers and thoughts positive are with you both all the way.:-)

    Dai.

    #92277

    Perkymite
    Participant

    I mirror the rest of the game in passing on my congratulations to you and Slim – Well Done. Now go get a good clean SCT:-D

    Kindest regards – Vasbyte

    David

    #92278

    eve
    Participant

    Thank you everyone for your good wishes,

    Slims shattered gone to bed and I am going to follow him,left home at 9am got back just before 8pm.It leaves us a bit dumb foundered, spent a long time for test that could have been done in Canterbury,Ex ray and Heart Monitor.The rest could have been explained in a booklet.!!

    Next appointment next Monday ,told no chance of going away out of the country,before SCT.So off to bed shattered,what a journey.Good Night Eve

    #92279

    tom
    Participant

    Hi Eve and Slim

    Gosh all that traveling you tell us about makes me bloomin tired (bless you both)

    And you are correct all that could be done local its all on computer so your other Dr's can see it anywhere.

    Hope you have a good nights sleep.

    Love Tom "Onwards and Upwards" xxx

    ps I was told no flying away prior to SCT and none for 6 months after 🙁 so brace yyourselves xxxx

    #92280

    eve
    Participant

    Hi Tom
    Well managed a few days away in motor home,but came home early Slim not to well,have been waiting on a phone call from Kings to tell us results,only to find they,did not ring mobile as requested,but left message on answer machine
    So its Kings again on Monday,for 6 hr drip,Slim has decided to go for SCT to see if he can maintain a reasonable quality of health.

    Seen new pictures from your facebook,did you go for the outing too?????

    Lovely day on S Coast,shame we have to go to London,on Monday,we are staying at daughters in W Kent,so the journey will not be so long.
    So looking forward to spring,I think when Slim is in hospital for upto a month,the bluebells will be out,so will miss them again.

    Looks if are 1st wedding anniversary he might just get out,still have not had party for wedding,so when he gets over this will have to make it a big party.Eve

    #92281

    tom
    Participant

    Hi Eve
    Am pleased you had a few days away in your moter home,shame about not ringing mobile's my Dr and Nurse phones mine here in Sunny Scunny, am sure the SCT will be good for Slim it worked a good un for me 🙂 yes Elaine and I went to cleethorpes for the day with one of our Grandsons it was a brill day not too cold.

    Like Slim (evn though i aint on anything) I get tired easy so it was an early nite for us all last nite but was up this morning just after 6 am.

    I hope its not too long before you can have that Party, after Elaine's treament the last bit of treatment was Radio Therapy and that finished on her birthday and I arranged a Party for her at our local even though it was mid week the place was packed great food great music and Elaine's treatment all done great time and worth the wait.

    Take Care and Give my Regards to Slim

    Love Tom "Onwards and Upwards" xxx

    #92282

    BADGER
    Participant

    Hi Eve
    glad you managed to get away in the motor home it will have done you some good so Slim is going for the SCT i do hope this will be a success so he can have a good chance of a better life Well one year on and a wedding anniversary which you didnt at times think you would see hope you can go out and celebrate:-)
    Regards to Slim
    Love Jo x

    #92283

    jmsmyth
    Participant

    Hi Eve

    I hope the SCT works for Slim. It's so hard to believe that a year has passed. Congratulations!! Hope you have a great day

    Love Jean xx

    #92285

    OutdoorsPaul
    Participant

    Hi Eve
    Fantastic news on slims move towards SCT, may the sun keep shining on your corner of Kent:-)
    cheers Paul

    #92286

    Helen
    Participant

    Hi Eve
    Good to see you enjoying a bit of time off at last even though it was cut short a bit. Hope you have a spell of plain sailing into the SCT
    Love Helen

    #92287

    eve
    Participant

    Thank You Everyone
    For your good wishers,very very impressed with Kings Chemo unit,it took us be surprise,after local hospital,the staff were very impressive,not one walked by looking down at the floor,and everyone kept checking all monitors.

    Gives us more confidence in SCT.

    Slim sleeping after busy time,next stage is harvest,so date fixed,will let you know how it goes,Thanks again for all your good wishers.Eve

    #92288

    Gill
    Participant

    I cannot praise Kings highly enough (food apart and that is not their fault it's all sub-contracted out)

    They were great whem Stephen was there and nothing was too much trouble.

    Good luck to you both

    Love from Gill x

    #92289

    DaiCro
    Participant

    Hi Eve,

    When I think of some of the hoops you two have had to jump through and the barriers, administrative, medical and staff related, that you had to take on, address and beat down… all of which should never have been put in place or, on a couple of occasions deliberately erected… well, suffice to say I am delighted that at such a juncture in Slim's treatment you have finally, finally found a hospital that will afford you everything he needs to progress.

    I could spit feathers at the imbalance and injustice afforded MM patients outside the major centres. I am fortunate, (although to be fair I made my own luck at a great cost) to have found the City Hospital, Nottingham, where the treatments, staff knowledge, nurse competencies and general courtesies have been second to none.

    [i][b]We all, every one of us, deserve to have the s[/i]ame[/b].>:-(

    But hold on… another time, another place.:-)

    I am so happy for you Eve… yes, Slim has still got to go through the procedures and all that follows but knowing where the procedures are going to take place and the support that goes with them, fills me with confidence on your behalf… love it, embrace it and from now on in, and may that be a long, long time, you should, you can, you must, demand nothing less.8-)

    Much love and regards to you both.:-)

    Dai.

    #92290

    tom
    Participant

    Hi Eve and Slim

    Wel am chuffed for you both as dai says "We all, every one of us, deserve to have the same" (and Dai I notice you are up early 🙂 )

    Good Luck with the Harvest and hope Slims ccompletes all in one day 🙂

    Lov Tom "Onwards and Upwards" xx

    #92291

    DaiCro
    Participant

    Hi Tom…

    I had a 3:15 moment… and stayed awake for an hour or so, just catching up… but the good news is I had 4 hours before and 5 after… not bad for the night following a 'DEXDAY TM' and without any form of sleeping draughts (I don't bother because I know it won't do any good)… so I left it to nature and nature obliged.8-)

    With so much bad news and grief hovering around the site this late winter I am so glad that we have some positive movement from one of our nearest and dearest… two people who must have have feared the worst on several occasions last year… and yet here they are, on the brink of the next crucial stage, with what must seem like a fresh start. At least that's the way I see it… and it is doing me the power of good.:-D

    And I wrote another song this morning.;-) 😎

    Dai.

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