[brochoParticipant]

Hi Chrissie sorry I didnt understand at first Oramorph is horrible I cant take it either but it might still be worth asking about alternatives like patches or slow release morphine I have found they are very good at seeking a solution once they realise how miserable pain is making your life Has there been any suggestion of radiotherapy for his back pain? I had some recently and it was very effective Wishing things will get easier for you both very soon love Bridget x

[MinParticipant]

Hi Chrissie
How are you? very worried I suspect and you have to take care of you as much as your husband. Its not easy but if you don't look after yourself you wont be able to care for him. Try and take some time out if possible and just escape the turmoil.
My husband was a keen DIY r and keep fit fanatic who was reduced by 4 and a half stone and 4 inches shorter from MM.
I recall trying to get him to eat and he too was shaking a lot and bunged up from too much morphine and pain killers.
Try some fresh figs or dried ones. prunes all the old fashioned natural remedies. you will find that once he has 'been' and evacuated his bowels he will gain something of an appetite small and often for meals serve them on a tea plate and he will be less likely to shove them aside.
Contact your GP and tell him the problems with oramorph. There are lots of other pain killers he can have with kidney damage9my husband has that too as well as a heart bypass) Quick remedy for constipation is pessaries you buy across the counter in Boots. Work instantly well almost instantly LOL Keep up his fluids as this helps with constipation too.
the shakes will stop when the drugs have had the opportunity to do there thing. He will get better it takes an awful lot of patience as its a slow long haul.
Get some high calorie powders from the dietician they are very beneficial and I am currently putting them in soup, porridge and gravy and custard…. Not all served at the same time but they are absolutely tasteless and work wonders compared to the awful drinks.
7 up is a wonderful way to rehidrate with lots of water too if possible but tea is good too. as long as its wet and not alcohol
Have Faith in his ability to come back and fight and things will get better.
Do you have any family who can help you? Sorry lots of questions but believe me I know how you feel as indeed do a lot of wives and partners an children and husband of MM sufferers and we will try our very best to help you if we can. Most of us have been where you are and understand totally how lost you must feel.
Take Care Love MIn

[MinParticipant]

Hi Renee'
It is an awful shock to get an MM diagnosis. Particularly when they accompany the diagnosis with the fact they cant cure it. BUT they an treat it and there are lots of things to be taken to get it under control. Don't worry about the quantity of tablets they all work in synergy with one another to do what is needed to knock the cancer on the head. I know from experience that once the medication gets underway and start to show results the shock subsides substantially and you get into learning mode. Learning what tablets to take when and what each of them do. What side effects they each have, and how to counteract the side effects.
Its a steep learning curve and once the results start to come in the fear subsides. Your Mum will get her life back, it will be different and she may be less active for a while but once she is responding she will get back to her old self. there may be limitations but not too great. The brakes are on at the moment but soon they will be loose and she can get back to her old self.
The dark and the middle of the night are dreadful times for all of us when we are confronted with MM in a loved one.
Put your mind to planning a holiday or treat for Mum when you have dark thoughts the planning takes your mind off the subject. Things will get better and time helps heal.
Take Care Min

[tinkerbellParticipant]

Hi Renee,

I know that the diagnosis is so difficult and so is the mass of tablets that you are faced with taking. I remember the pile of tablets on the first morning I took chemo with a glass of water and 45 minutes later the pile was gone. My sister who is a nurse offered me a piece of great advice to pop the tablets into a yoghurt and eat them for breakfast. I'm still doing that and it's so much easier. Hope that all goes well.
Pamela xx

[eveParticipant]

Hi Everybody

Just had to tell you,my husband say,s the amount of tablets are a meal in it,s self:-P eve

[annParticipant]

Hello Renee and Chrissie.
Renee the shock of diagnosis is so hard you just cant believe that it is true. It does sink in eventually as you are probably finding. Everyone deals with it differently. I wanted to find out everything I could about mm till it became almost obsessive!My husband (71) started CDT in March so hes on his 4th cycle. He has been ok with eating etc the only problem is infections. Has anyone else experienced this whilst on chemo? He is recovering from the 2nd bout of infection. It makes him go downhill really quickly and is very scary for me seeing him like this. Both times it has meant a rush to hospital for antibiotics. We do keep a close eye on his temp all the time but I find it very difficult. There is only the 2 of us (families live a long way away) and I find it rather overwhelming when trying to judge when to seek help. The infection also seems to affect the pps which went up last time. We have now been told that he will be having another 2 cycles of CDT.David was a fit farmer and it so hard to see him feeling so weak and low with this infection. It does help to hear of others going through similar experiences. Best wishes Ann

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