[jackie0503Participant]

Hello my name is Jackie and on the 14th feb my world fell apart.
My mum has been diagnosed with mm and acute kidney failure.
She is having dialysis 3 times a week and chemo twice a week.
Would love some words of encouragement and advice. My mum is staying really strong and says she is going to fight it all the way I just hope she can keep up this inner strength
Thanking you in advance

[jmsmythParticipant]

Hi Jackie

Sorry that your mum has MM but welcome to the forum. They are a great bunch on here for Info, advice and friendship. My husband is in hospital at moment as he had a SCT yesterday. Sorry I can't give you any info on kidney failure bit I know there are quite a few people here that have had kidney problems. I sure someone will be along soon

My best to your mum
Jean

[EmmaParticipant]

Hi Jackie,

So sorry your mum has been diagnosed with mm and acute kidney failure, however you really have come to the right place for advice and support. It is my mum who was diagnosed with mm in oct 2012, it is such a massive shock and one which is difficult to come to terms with especially when doing Internet research and reading some very unpleasant things.
Stick with this forum and you will feel far more positive and well informed in the coming weeks, months, years.
My mum was diagnosed after months of terrible back and rib pain and feeling very low. It was established she was anaemic and her kidneys were in a bad way. After numerous X-rays, MRI and bone marrow biopsy it was established myeloma had destroyed one vertebrae hence the pain. She was admitted immediately for fluids and monitoring of her kidneys and luckily they have recovered sufficiently and she was able to start CDT in December.
She had a fall at home a week into her 1st cycle and broke her hip so she's been in hospital ever since still having her chemo. She's got 4 more weeks to go and although its been tough on her body she's stayed positive throughout a dis coping very well. My mum also said at the very start she would give it her best fight. To be honest I fell apart at the beginning and still have my days now, but so proud of how my mum has handled it all and fingers crossed is on the road to remission (we have not been given blood results yet but as Tom on here says, if the dr is smiling he's happy. Mum's is so we are.

It's really tough on family members watching their loved ones go through this and feeling helpless to do anything, I honestly have found so much comfort from the lovely people on this forum who I'm sure will drop you a line as well. There will be many on here with kidney problems who will be able to give you much needed advice and support.

Love and best wishes to you and your mum.

Love Emma. Xx

[tonyfParticipant]

Hello Jackie, so sorry to read about your mum. I was diagnosed about a year ago with myeloma, I went through a drugs trial and over the past month have just completed a stem cell transplant. It will be about 3 months before we know if the stem cell transplant has been successful or not, so fingers crossed. I can only tell you of my experience, Like your mum i have remained positive throughout the whole time, I have had great support from my wife and family and have nothing but praise for the NHS, from the nursing staff, the specialists, the doctors, support people. You say your mum is strong and is going to fight it all the way, good for her, may she do it with a smile on her face, and with no complaints. Some of the treatments are really quite unpleasant but you know the side effects only last for a short while, and hopefully the benefits out way the hardships. Here in Leicestershire we have a cancer support group, who offer help and advice for both patients,family and care. I am sure there will be the same type of group in your area, give them a try! I also found Myeloma UK useful, they can answer a lot of the questions that will no doubt come to mind. Go along to one of their info days, I found the local day really useful. I hope your mum keeps her inner strength, tell her to keep smiling, it will help you both. Hope the treatment goes well.
Regards Tony Farquharson

[teds31Participant]

Hi Jackie sorry about your Mum and I hope the news gets better, keep looking on here and ask all the questions you like there are lots of people with good medical advice. You should also ask your Doc as much as you can it helps to keep you in the picture. Ted

[feaseyjaneParticipant]

Hi Jackie

So sorry to read about your mum
I was diagnosed the end of Feb and my family and I are still coming to terms with it all
All the people on here have made me very welcome and offer lots of support and a shoulder to cry on when needed.
Having a supportive family really helps .
If you ever need a rant ,just et me know.
We will all get through this together

Take care Jackie

Jane xxx

[adamsp41Participant]

Hi Jackie…sorry to hear about your mum…I was diagnosed with mm in jul2010 and also suffered acute kidney failure (kidneys only 10% efficient)when the mm decided to start it's nasty work…I had an SCT in Jan2011 and am now part of the Myeloma x1 trial…I am now in Stringent Complete Remission (lovely words ) and my kidneys have recovered to 46-48%(my Kidney consultant is over the moon )…so there is light at the end of the tunnel…I found taking the hurdles one step at a time helped me immensely…Myeloma uk are a good source of info and comfort if you have any issues…love and best wishes to you and your mum…stay safe…Phil

[mhnevillParticipant]

Hi Jackie

Just wanted to welcome you and your Mum. Sorry you've had to join us. It does all sound so grim at diagnosis, but at least they are on your Mum's case. I'm sure she will do well. The important thing is to stay positive – there is lots they can do.

Best wishes to all the family.

Mavis

[jackie0503Participant]

Thank you jean for your message. I hope your husband is doing well
Kind regards
Jackie x

[jackie0503Participant]

Hi Emma
Fortunately mum has got no problems with her bones at the moment. She has only had one injection of chemo so far as they have had to stop it as it was affecting her liver. Hopefully they will be able to restart it next week. She has been fainting a lot as her blood pressure has now gotten really low. Its so hard seeing her so poorly and feel so hopeless. Hope your mum is doing well and you have had a nice mothers day. We have had a lovely day with mum, just hope we get many more with her.
Jackie xx

[jackie0503Participant]

Hello Tony thank u for your message. I hope it finds you well and you get a good result from the sct. We are also in Leicestershire. Is the support group at Helen webb house? Is your cancer nurse specialist Jenny?
Mum is not having any treatment at the moment as it affected her kidneys. Hoping she can restart next week if the bloods are a little better.
Kind regards Jackie

[jackie0503Participant]

Hello Jane
Thank you for your message and so sorry to hear about your diagnosis.
How are you getting on with the treatment?
Kind regards
Jackie

[jackie0503Participant]

Hi Phil
Good to hear you are doing so well. Its very encouraging to hear. Are you having dialysis? mum is having it 3 times a week. She has only had one chemo injection at the moment as it affected her liver. They are hoping to restart treatment this week if her bloods are ok.
Thank you for your message xx

[jackie0503Participant]

Hi Mavis
Thank you for your message it really is appreciated.
Kind regards
Jackie x

[tonyfParticipant]

Hi Jackie. Thanks for your reply. Yes I am attending the Leicester Royal Infirmary, currently under the Bone Marrow Unit but expect to be referred back to the haematology unit very soon. The group meets at Helen Webb House. Have you been there, they offer al sorts of services for both the patient and the carer. And yes one of the nurses is Jenny Rogers. Though my contacts have been two male nurses, Dave & Cass, they have been controlling the Myeloma X1 drugs trial that I have been on, but I do know Jenny. Small world eh! Really hope that your mums treatment can restart sooner rather than later. I'm sure that our paths will cross at sometime. Stay strong for your mums sake, hope it all goes well. Tony

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