Hi Tom,

What a faff on getting into this new site! Please forgive me I’ve been off this site for a while as my mum has been doing well and we’ve tried to put MM to bed for a while so we could enjoy the Xmas period considering last year was pretty pants. Now catching up and discover you will be going back on treatment. I always think about you so…[Read more]

Hi Ali and Vicki,

Mum is mobilising really well. She's using 1 walking stick and has had her shoes build up so she's even after losing 2 inches in height. She certainly seems better in herself now and I think it's just a relief for her not to be talking all of those tablets. I'm glad the weather is picking up now, she came home on a lovely…[Read more]

Hi Helen,

Mum came out of hospital 3 weeks ago and came back home. She's doing really well. It's taking time for her to settle and build her confidence again after 4 months in hospital. She had her appointment with consultant this week and we received the good news that CDT has done the trick and now she's on 3 monthly checks. We are all very…[Read more]

Helen,

I've not been on here for a while and am just catching up now. Sorry to hear relapse has been confirmed, however it ends the limbo period of uncertainty. I'm glad you feel generally well and hope they can get on top of your pain ASAP. I look forward to reading that Velcade does the trick for you and hammers the nasties back into…[Read more]

Fantastic news Peter!

Congratulations, such nice news to read before I close my eyes for bed. My mum finishes her 6th cycle of CDT on 5th April and am keeping everything crossed for positive results!

Love Emma.x

Hi Jackie,

So sorry your mum has been diagnosed with mm and acute kidney failure, however you really have come to the right place for advice and support. It is my mum who was diagnosed with mm in oct 2012, it is such a massive shock and one which is difficult to come to terms with especially when doing Internet research and reading some very…[Read more]

Sharon,

We initially asked for a referral to the dietician at the hospital to monitor mum's weight and things. Since then they've been great. Mum has ensure supplement drinks and although its not a replacement for food really helps On the days when she has struggled to get food and fluids into her. On her steroid days she tries her best to eat…[Read more]

Hi Sharon,

Yes mum is still in hospital, 4 weeks of CDT left. She initially lost 2 stone but has put a stone back on. She's had anti biotics regularly for suspected chest infection and urine infections but she's been ok. They're not going to operate on her hip so she's doing physio to get better mobility.

So glad your mum is coping well…[Read more]

Hi Sharon I'll reply on my other post 'ah so this is dex' so as not to intrude on Jane's post. X

Jane,

It's tough news to come to terms with, it is my mum who is 64 who was diagnosed with MM in October 2012. If I can give you one piece of advice that certainly seems to be a common theme on this forum….Positive mental attitude. My mum has remained positive throughout her CDT, she is now on cycle 5 of 6 and is doing really well. Just…[Read more]

Absolutely fantastic news!! Great to hear all if that hard slog was worth it!!

Love Emma. Xx

Fantastic news Tom!! It's lovely to hear you are doing so well and to read positive things on here! Hope you and Elaine are celebrating the news with a nice tipple and a lovely valentines meal!

Love Emma. Xx

Hi Peter so glad to hear you are doing so well after your SCT! I think you definitely deserve the star pupil award. It certainly has to be mind over matter in the fight against MM. You're doing a great job and encouraging others in the process.

I'm just looking back at your old posts regarding your journey on CDT as mum is now on her 4th…[Read more]

Thanks Tom and Helen for your kind words and supportive advice. Mum was in a more rested mood tonight, I'm hoping it was partially down to the Macmillan nurse visiting her. 1st time since diagnosis. I have heard so many positive things about Macmillan and am looking forward to meeting the lady. Hopefully she will be in regular contact with mum so…[Read more]

Hi Eva,

Thank you for your response, what I meant was mum does not want an overnight carer. As far as I am aware mum would need to pay for an overnight carer if she felt one was required, but my mum is a very proud and independent lady and does not want a stranger in her home. Unfortunately I would not be able to stay overnight with her due to…[Read more]

Hi Charlie,

Glad to hear you're doing ok and back on treatment. Yes it certainly is more reassuring mum is in hospital whilst on her chemo, I can understand your wife keeping a very close eye on you, things change by the minute! Mum is doing ok, she's just getting through it, that's about the best way to describe it.
Best wishes for your PP…[Read more]

Thank you very much for the above post, very helpful and reassuring.

Emma. X

Hi Charlie,

How is 2013 so far? I see from your other post you're back on your drugs. What did you decide on? Mum is now starting her 4th cycle of CDT, she's still in hospital, having good days and bad, feeling pretty rough but half way through now. Like you we're hoping for a good result at the end of the treatment so we know the hard times…[Read more]

Sal,

I'm so sorry to hear of your dad's passing. My thoughts are with you and your family at this time. The treatment is very tough on even the strongest of bodies. The fact your dad was able to have the choice of whether to continue his treatment is good and I'm glad you were satisfied with the care he received. It is very tough on those…[Read more]