Hi Emma
glad your mum has turned a corner, my mum hasnt had any ore finger paindespite her thalidomide being increased to 150mg every day. She has been really good until getting a chest infection a few days ago but she is on the mend i am just hoping when we go to hospital for cycle 4 they feel she is over it enough to let her carry on with no…[Read more]

Hi Emma
just wondering how your mum is doing and is she home or in hospital, mine about to start cycle four but has a chest infection at the moment so hope it willnot stop the treatment.H as your mum lost any weight mine has lost over a stone despite eating fairly well just wondered if the drugs did this

hi there

My name is Sharon and i too have a mum who was diagnosed in december just before xmas so made for a terrible time with all the worry, which didnt help when my dad died suddenly at my house between xmas and new year. However on a positive note my mum was also fit and well at 69 years of age no infections ect so really hard to take…[Read more]

Hi my name is Shaon and new to this site as well i am a carer for my mum who has been diagnosed with mm in dec and is now just on second round of CDT. She seems to suffer just with sore bones 2 days after coming off dex, but can i ask if anyone suffers tremors on thalidomide, sometimes it is worse than others, also after her infusion of zometa she…[Read more]

Hi Emma

Not seen you posting for a while and just hoping that all is ok with you and your mum, i am guessing you ae busy with being back to work, drop me an e mail if you get time

Hi
My name is Sharon and i am caing for my mum who has recently started CDT for her myeloma after 3 years smouldering this is near the end of her third week.
The terrible thing is she was well at 69 years of age and had no symptoms it was just her para protein that went from 19 to 29 then had bone marrow to confirm treat was neccessary. Since…[Read more]

Thanks for your message this is a total nightmare and dont know where to put my feelings right now. My mum is well at the minute and on her first week of treatment but i dont know how the future will be. I am so sorry you are in the same position as me but good to have someone to understand how it is, fingers crossed for your mum

Hi Tom

I would be grateful for a copy also as my mum has just been diagnosed and starting treatment tomorrow

Many Thanks

my e mail is rachaelhannaherina@yahoo.co.uk

Emma

I am not great on all these sites cant seem to get ur message today or find ur e mail adress mine is rachaelhannaherina@yahoo.co.uk so maybe you could mail me again to give me your update

Hi Emma

Sorry just replying to you i cant seem to find the message you sent to me at all . I hope all is good with you and your mum, my days have just got worse with my dad passing away suddenly after xmas and now got to have mum starting treatment on thursday, i feel as though i am in a bad dream, just hoping that thiungs will get better .We…[Read more]

Hi Emma

Sorry not been on for a few days with it being Christmas and all, not that i have felt much like it at all, just want to get treatment started and try and look on. Mum and dad been staying with me she has had a chest infection and thats before anything starts at all nearly finished course of antibiotics and had chest x ray last week now…[Read more]

Hi Emma
Thanks for replying, firstly hope your mum is doing better as it is a further problem to cover hospital visits as well as kids and work and if you are like me you would not miss one if poss that is why it is so much easier when they are at home. My mum has only had a 4 day course of dex and some anti viral tablets along with losec for…[Read more]

Hi Emma
My name is Sharon and i am also looking after a newly diagnosed mum she is 69, i am an only child have 4 kids of my own but feel really alone and devastated by this disease so great to read that your mum is doing better and that things can and will improve. I am new to this site as well so finding posts from everyone in every section and…[Read more]