Hi All
Well we are off for a break,taking a bit of a chance,but I do not give a dam
The last couple of years have been no picnic and at times very stressful, Tom talks about having a chemo brain,I do not think you can expect anything else,2 chemo treatments then SCT,little remission,the roller coaster starts again.
We have decided we are having a break,the Revidimide. Starts in June,it does not come as a shock,in fact did not need to be told,just new it was back. No fears just facts,no choices NICE decides ,post code lottery yes. So. After months of not knowing,we have been told officially off MX1 trials next step Revilidimide .
Sailing away from this Myeloma Bubble leaving it behind for a short time, building up strength for the next hurdle, buying time .
Wish you all the best. Eve