Hi Friends
I went to the Newcastle infoday today and ………………don't know how I managed to do it but I stood up and gave a talk from a carers perspective.
It was the scariest thing I have ever done. A room full of 80 patients and carers plus professionals.
I had the worst heart palpitations and dryest mouth ever. I was asked some time ago to do it, but imagined I would bottle out and not go when the time came. Peter was unable to attend low neutraphils impending chest infection and ever the silent suffer. But he wrote his thoughts as a sufferer and his nurse specialist read it for him.
Phew Im pleased I did it but it cost me a sleepless night.
More importantly the day was amazing. The smack bang up to date information was really interesting and Professor Jackson who fronts a lot of the video s on this site was there too.
The opportunity to ask questions of health professionals was really useful. I learnt a lot about exactly what the treatments you get actualy do and what drugs are waiting to come on stream for the future.
All in all it was a day I would not have missed for the world as I learnt so much. More importantly I met a lot of really lovely people who are patients and carers and come home feeling great.
If the opportunity allows I would ask you all to make your way to one if you can, Ellen and her colleagues were there and they are a lovely bunch of people who run Myeloma UK.
Min
