[SuzanneParticipant]

Hello my name is Suzanne, Myeloma Mumma to my girls, I am 51 and have Myeloma, I was diagnosed in October 2012 and am about ready for my stem cell transplant, last March I was diagnosed with grade three aggressive breast cancer so I know all about the lovely chemotherapy and radiotherapy we are good mates, dealing with breast cancer and having all the operations and treatment was one thing but the Myeloma has sort of taken over my life and my wonderful families lives too, I seem to live at the hospital, today I should be getting my date for stem cell harvesting and the transplant will be at The Churchill in Oxford. Has anyone experienced it at The Churchill, it is a beautiful hospital, but I am a bit worried as it is a three hour round trip for my family and I would like to know the pro's and con's of it.
I'm off for my last chemo, round three of cycle six!!!!!!!!!!!! Lucky me,

Happy days Suzanne xxxxx

[feaseyjaneParticipant]

Hi Suzanne

Sorry to hear about past medical history
I can,t really help you ,onSCT as only just diagnosed myself,and start my chemo tomorrow
Many people on here will be able to offer you lots of information.

Wishing you all the best Suzanne.

Jane

Xxxx

[tomParticipant]

Hi Suzanne

Sorry you had to join us 🙁 but a warm welcome you will find in here great bunch of folks 😎

You will find a few blogs on here with people going through or have gone through the SCT, I did not do a Blog wish I had as you soon forget (well I did) the SCT is an uphill struggle at times but its a "Doable" I done mine in December 2009 and I sit her in remission and Drug free.

Am also sorry about your Breast Cancer, my young bride was diagnosed in Jan 2008 with grade three BC had a Lumpectomy and five lymph nodes removed, and Elaine (the young bride) has just finished on Sunday taking the tablet for 5 years back for her Last check up in June.

Stay Well

Love Tom Onwards and Upwards xxx

[dickbParticipant]

Hi there, I'm new to this also but reading through the posts prior to signing up, I would say we are in good company. I get a bit emotional with some posts but overall it is uplifting and good to know you are not alone.

I don't know if you know your history but during WW2, young RAF pilots that were severely burnt went to a specialist pioneer called Archibald McIndoe in Redhill. He pioneered plastic surgery. Now, because there were so few of these guys and it was all experimental, they called themselves the Guinea Pig Club. I'm beginning to think that we have joined an equally exclusive and fascinating club as theirs.

Question is, what do we call ourselves?

[VickiParticipant]

Hi there and welcome to this club….but not really wanting to be a member!

My partner Colin was diagnosed in October 2011, resulting in an sct in November 2012. Prior to the sct he was on induction treatment of revlimid, cyclophosmahide and dexamthazone. He had 7 cycles of that and then a couple of availed stem cell harvests, the getting just about enough on the third go 🙂

We hope you sail through with little trouble…..you sound a tower of strength going through great cancer as well (what choice did you have hey :-). Very best of luck and if we can answer any of your questions please ask 🙂

Vicki and Colin x

[SuzanneParticipant]

Well thank you all for the quick reply, I didn't get the news I was expecting, I have two more cycles to go before harvesting so that's another six weeks of chemo and thalidomide and now they want to introduce steroids which I have been avoiding,

Yes Dick I feel just like you I feel they are testing stuff out in me, a human Guinea Pig, I filled in a Myeloma survey the other day and it asked if I would be interested in doing a trial, well yes I would anything that may help me and all my myeloma mates get better, before I was diagnosed I had never ever heard of the word, now it's almost all I think about, which is a bit sad, but I don't let it rule my life and I do have a lovely amazing family.

And no we are not alone which is a sort of comfort, the only other person I have met is a 86 year old lady at chemo, who don't look too bad for someone who has had it for 22 years and boy can she eat !!!!!!!!!! And when the sherry trolley comes round she is first in line, she is well funny.

Suzanne xxx

[feaseyjaneParticipant]

Hi Suzanne

Just wondering how you are
I get behind with my messages and end up posting
Threads everywhere and anywhere

Anyway just thought I would drop you a line to say
That I was thinking of you xxx

Jane xxxxx

[lindawintonParticipant]

Hi Susanne, I've just joined the site and read your message , hope your feeling okay. I was diagnosed five years ago and had six cycles of CVad treatment then a sct. It was a rough time but you get through,you and your family have been through a lot already that I'm sure you'll manage just a wee bit more. It's worth the fight just to be with them.
The sct is the same as pregnancy in that each person's experience is there own. You can here rotten stories and some that are okay it all depends on how you take to it but don't be scared off by bad stories. It really is bearable.
If you have any question just give me a shout and i will try to help.

Take care, Linda

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