I would be interested to hear from other Multiple Myeloma patients in Wales.
Am I an isolated case, or are others experiencing similar problems with follow-up care and continuity of care?
For context, my last consultant review was on 2nd December 2025.
I then had a follow-up appointment cancelled on 31st March 2026.
A replacement appointment was arranged for 1st June 2026 and that was cancelled as well.
During this period my consultant retired on medical grounds, a promised consultant phone call never happened, and my next review is now scheduled for August 2026.
That leaves me with roughly eight months between consultant reviews despite living with Multiple Myeloma.
The only consistent support I have received has come from a cancer nurse, who has been extremely helpful and has done her best throughout. However, she is not a consultant and should not be expected to fill gaps in specialist continuity of care.
I am genuinely interested to know:
– How often are you currently seeing your consultant?
– Have you experienced cancelled appointments?
– Have consultant retirements or staffing issues affected your care?
– Are you finding communication from your haematology team improving or worsening?
– Which Health Board are you under?
I am trying to understand whether my experience is unusual or whether there are wider issues affecting Myeloma patients across Wales.
Thank you in advance to anyone willing to share their experience.
