[eveParticipant]

Hi Everyone
London today,and everything is fine,will not have to go again until February,and once appointments are sorted,it will be 1 every six moths for London,and 1 every six months for local hospital,so all good news.

Now to start living are lives again,thinking of going to France again,but will have to book New Zealand for Christmas,promised the grandchildren,they Skyped the other day,there only 5 and 6 years,did it all by themselves.

I have posted this for people who are starting the journey,we started our journey nearly 2 years ago,and I thought I would let you know it is doable,
If someone had told us Slim would still be around 2 years later,after lots of hiccups,Slim me and a lot of people would not have believed it,so never give up.Love Eve

[jmsmythParticipant]

Dear Eve and Slim

So glad to hear your very good news. Enjoy all you trips!!! (Our scrabble is still on!!!!!!!)
Love Jean xx

[eveParticipant]

Hi Jean
Yes Scrabble still on,I have 5 games on the go at the moment,I was doing so well against you,then you snuck up on me. lol

How are things with you,,4,5,6.Cycle is hard,just keep an eye out on blood pressure if it goes down,there is something amiss,so easy to miss an infection with steroids.

Will not be long before remission and then SCT,all new learning curves,So both of you hang in there,and if your worried,do not hesitate to contact us.

Are you going to the Belfast info day.???? Eve

[JoanneKParticipant]

Dear eve and slim…

What a lovely post that has given me lots of reassurances for my dad. So glad to hear your good news… Here's to many more years and hope you both enjoy the wonderful trips you are planning.

Take care

Joanne xx

[jmsmythParticipant]

Hi Eve

Yes going in Saturday to info day – needless to say Frank not going. Off to'hospital tomorrow, consultant wanted to,seem him (2 weeks since last visit) because of infection he had in bladder she though caused by chemo drug – so she gave him another one to take with the chemo to help. Had no infection but side affects not good. I was so please to read aboutmSlim, he had a real bad journey but one thing Eve it has given a lot of people hope knowing what Slim came through.

Love the scrabble, I play with you on face book and, I play with sons and a friend in Australia on an app on my IPad. The friend in Australia uses words I have never heard off and because of her I have beaten son quite a bit. He's not a happy bunny – his mum beating him so much.

Play you soon love and best wishes to,you and Slim
Love Jean x

[meganjaneParticipant]

Dear Eve and Slim,

Thank you for posting your good news, you are right, for those of us at the start of the journey who have already experienced a few hiccups it is lovely to hear positive news. Enjoy your travels!

Megan

[mhnevillParticipant]

Dear Eve and Slim

It is great to get such encouraging news about Slim. It is grezt to think you will be in NZ for Christmas. Who would have thought it this time last year with all you have been through.

Enjoy your new life!!

Lots of love.

Mavis x

[eveParticipant]

Hi Mavis Megan Joanne and Jean

Yes it is all good,I realised how I felt right through Slims treatment and how many people helped me through the many months with all Slims problems,We seemed to live in the hospital at one stage,and it is so nice to have this extra time to enjoy.

Jean I think Slim would be the same about going,I think they feel they have enough to cope with,they think it will be all doom and gloom,it has taken all this time to get Slim to occasionally read post,he is beginning to realise you can learn an awful lot,he tends to worry for days then mentions what is bothering him then I can tell him its either normal or we should mention it when we go in.Its called being a man.love Eve

[tomParticipant]

Hey you two

Aint you BOTH done well you and your team have and are working wonders 😎

Great Post for the Newbie's and those that are having a rough ride, now all can see it CAN and WILL be sorted just takes longer for some ?
Onwards and Upwards now you two Great Post

Love and Hugs from Us Lappin's in Scunny "Onwards and upwards" xxxx

[VickiParticipant]

Eve,

That's wonderful news and really encouraging for us who are on your coat tails! Best of all though it's great for you gys after all you've been through.

🙂

Enjoy whatever you have planned next

Vicki and Colin x

[eveParticipant]

Hi Tom and the family of Lappins

Will be lovely when it is 3 months appointments,already been told if we want to go away for any length of time,it can be arranged around Zomita.

It is a good feeling,just to know we are in this position,we will just be doing everything a bit slower as Slims body has taken a battering,and is still on pain killers,gut and bowel medication.but he is alive and I do not have to do a Bates job on him ( psycho ),for his pension lol,he now wants a divorce claims he married me under duress (ITU ).

Lovely pictures of the kids,your a brave man having the kids to stay,have you heard from Dai or Helen at all,I think they are having a holiday.

I do hope people who are going through a rough time get some comfort,that it can be done even when you have problems along the way,and you cannot see any light at the end of the tunnel. Love Eve

[docmikeParticipant]

Dear Eve
Very good news and much more positive than your last reply to me in july?
Never give up indeed ;to which I would add dare to beleive that a cure/or longer term control is getting nearer (based on my reading of the published research over the last 4 years ;more treatments available and more in the pipeline ;availablity and access may be a problem as we ve discussed but paradoxically relapsers probably will get the better newer treatments quicker then those on their first treatment .)
May be in New zealand in february visiting my son ,so may see you there !!
Best wishes Mike

[eveParticipant]

Hi Mike
Yes mike it is like someone has switched on a light bulb,and you can see a way forward.8-)

I think at the moment we will settle for this time we have, and try not to look to far back or ahead,as both are not a nice place to be,I see the Myeloma Trials helping generations ahead,in a cure,for people who are here now I only see it buying time,but it should not be dismissed as time is so important.

Were are you going in NZ,it is a beautiful place,last time I was there,I met up with my brother who I had not seen for a few years,we live about 380 miles from each other,but some how managed to be in the same city in NZ,have not seen him since and that was 3 years ago.Just never in the same place at the right time.Love Eve

[BADGERParticipant]

Dear Eve and Slim

thats wonderful news I agree never give up I feel there is always something round the corner Enjoy New Zealand and the grandchildren so there is light at the end of the tunnel long may it last dont forget to dip in and from time to time it will be nice to hear from you.
As for scrabble i play my 10 year old grandson he cheats!!!:-P
Love Jo xx

[docmikeParticipant]

Dear Eve and Slim,
My son works as a physio in Whangarei,north island; so blood tests(november) willing, that s where we will be in late jan/early feb . We went to New Zealand back in 2010 when he was there before ,altho we did not go to Whangarei and did more in the South Island in our campervan.
mike

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