[mavisParticipant]

Hello everyone

My beloved husband of 20 years was diagnosed yesterday. Bolt from the blue. The doctors say it is treatable but I know that means they know how to treat it, not that the treatment will work in every case. I am so scared right now.

Mavis

[tmcParticipant]

Hi Mavis,
There is a long list of words to describe the first feeling when given a diagnosis of MM scared being just a mild one,
My husband was diagnosed in 2004 and has had four years in remmission now on Revlimid. There are a lot of treatments out there and once they find one to suit him I hope he gets a long remmission time.
Telling family and friends is really hard, even now my family don't know the half of it, so a site like this is great for chatting.
I also think if you can find a support group to visit it would be a great help. I didn't do this until just recently when I started being overwhelmed, a bit like you,as we are starting all over again as his remmission has finished now, and I wish I had found help years ago.
It can just be a mind state as well, I now put on my careers hat and go at a slow pace during hospital visits with plenty of knitting or good books to read. I also take a note book and document everything, it's amazing how nmany times you will be asked the same questions.
Good luck with conveying your news on the weekend,my children were still in universoity when we told them, one did very well and moved back in as soon as uni was over,to help out while looking for work, the younger one found it harder but has since moved onto clinical work and has such compassion.
So good luck with it all and stay connected to us here.You are not alone Love Teresa

[jmsmythParticipant]

Hi Mavis, I'm sorry that you have jhad to join us, but welcome. You will find support, advice and comfort from cyber friends here. This is the best place to rant and rave, and no one will say anything My hubby was diagnosed 2006. He is still "smouldering" , no treatment. The hardest thing we have ever had to do was to tell our 4 grown up sons. They were very shocked but now they are my tower of strength. We still have not told our oldest grand daughter – 14 – as she absolutely adores her "papa Frank" and we don't think she could handle it. I understand how scared you are, I think we all have gone through that. I was recommended to see a counsellor – through Macmillan – and it was the best thing I could have done. So reassuring to know they are at the end f the phone. Any time you want to scream – come on here – someone will have been where you are now.

My best wishes to you and hubby
Love Jean xx

[PerkymiteParticipant]

Hi Mavis, Welcome(?). Sorry you have had to join us but you will find they are a good bunch here.

Be wary of what your read generally on the Internet a lot of it is out of date and can be very depressing. This site is packed with useful, up-to-date, information so take your time to search it; you will find it very, very helpful. If you have a question please feel free to ask on this forum, you will find people on here who are at all the stages of Myeloma and if they cannot help there is always our own personal specialist Myeloma UK Nurse Helen who is just a free phone call away.

I am not a career I have Myeloma but I know exactly what you mean about telling your children. I was hospitalized at the time so my wife had that task. I am 69 and my children are in their late 40s my oldest grandchild is 18 youngest 8. On occasions I have discussed with my 8 year old granddaughter what Myeloma is doing to me she is very curious and inquisitive and asks the questions the older Grandchildren do not like to ask. It can be very refreshing in some odd way. It has been a very rewarding experience to feel the love of my children and grandchildren as I go through this and I have taken the opportunity to tell them how much I love them.

Kindest regards ? Vasbyte – you are not alone.

David

[mhnevillParticipant]

Hello to another Mavis

So sorry you have had to join us, but do take some comfort from what everyone is saying, that there are lots of options – more all the time. Of course you will all be in shock, but you will be surprised how much courage you find you have.

Best wishes to all the family.

Mavis N

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