Hi, I have finally got round to joining this forum having being diagnosed in June 2012. After a routine blood test it was discovered I had a PP of 30. All a bit of a shock, which was then followed by full x-rays and bone marrow. Thankfully x-rays were all clear, but bone marrow had 15% myeloma cells.
I have been on regular blood tests by my local haemotaology department, a 'watch and wait' view as I have no other symptoms.
Today my PP was upto 38 which I was dissapointed at, plus occassional upper back pain – which I will now get an MRI for.
Its very interesting reading everyones comments – and it would appear that everyone has different symptoms and levels.
Would love to hear from other smouldering patients, plus I think I am in the group of younger patients at 43.
Accepting the condition is getting a bit easier, but everytime I get tested I think 'is this the one?' So a bit of an emotional rollercoster. Not knowing when this started makes it unclear how long I may smolder for, but with monthly checks I expect consultant will get a better picture.
Thank you for reading
Sarah Jane
Lorna 12 years, 1 month ago.
