Thanks Vicki
I was warned it could fail – didn't realise it could fail twice! I now everything crossed for June. I know my CD34 was 3 and they could only do transplant when it was 8-10, so I was way off. Shame they can't do a test before you have to go through priming chemo/injections.

The funniest thing was it wasn't my head hair that I…[Read more]

Thanks Tom, will also save me lots of money on haircuts/shampoos etc 🙂
Although I am now spending money on scarves and hats – and suncream for my head – a new novelty
xx

rebeccaR

Harvesting for a rainy day sounds like a good idea, if I'd known I could of done that I would of. I was on Cyclophosphomide through my cycles – I was always told hair may stay/thin/fall out, but it stayed. I think the priming CYC is 4 times stronger which is why mine fell out over a few weeks, I also pulled/brushed it out, ironically I…[Read more]

Thanks Ange, sorry things are progressing – but at least you are being closely monitored. xx

Thank you all for all your tips on blood results. Consultant was more than happy to give me past results and as her printer wasn't linked up I sat there and scribbled them down, still some blanks still to fill next time but a good start.

Start of Cycle 2. 3. 4.
Haem: 12.9 13.1. 12.7
WBC: 4.1 3.6 2.7
Plate: 215 124…[Read more]

Thanks Mavis. I always get pp a month later at next appointment, bit of a pain, tomorrow I finish Cycle 3, but get pp results for Cycle 2 at appointment.

Will see if consultant is happy to give me a printout 🙂

Chris, Brilliant, have it somewhere, or will download it,

Jean, no I don't have it but will call them tomorrow, always useful

Peter, I always see it on her computer screen, with numbers in red (guess these are the numbers misbehaving!), will see if she'll print it out for me 🙂

Thank you

Thank you so much for all your replies, all interesting to read. I know everyone is different but it helps to know how people cope with everything.
I am now on day 14 of my first cycle. I have never taken so many pills :0

Chemo tablets OK, taken with anti-sickness.
Revlimid – dizzy/foggy head, night sweats, awake at 4pm – not helped by all…[Read more]

Thank you for your reply, it is interesting to hear other peoples stories and puts some perspective on the situation. I try and keep busy, working full time with a 10 year old son helps. Occassionally I have moments when my mind drifts and I start worrying but I guess this is normal.
Thank you again
Sarah Jane

Hi Ange
I too was recently diagnosed with SMM in June. PP was 30 but has slowly crept to 38, but it was good to hear from my consultant last week (I go every 4 weeks) that they wont start treatment till PP is 50+. Like you I have no symptoms, and I hope the back ache I am getting is down to stress rather than anything else, but I am due to have…[Read more]