Hi Sally, I’m certainly a ‘New kid on the block” when it comes to posting replies……I thought I’d successfully posted this yesterday….but apparently not 🙂
Your situation seems similar to my initial diagnosis. Radio therapy was considered for my plasmacytoma but when they detected it had spread they opted for treating the whole underlying MM. The first month or so was an emotional journey for me, with mostly downs but occasional ups. I suppose I didn’t feel any loss of control because I largely just took the guidance of the consultant and team, they took me through the choices. I went on the Myeloma XI trial. That was about two and a half years ago. The initial chemo treatment went well…no real problems apart from the dexamethasone making me a tad hyper to start with and a tad depressed when stopped. June 2014 I had a stem cell transplant. I’d been forewarned that I may feel pretty unwell and under the weather for maybe a year, well, I was lucky, for me it wasn’t too bad at all….now (touch wood), I’m still in remission and feel great.
There are so many good things happening medically and the existing armoury is already extensive….your consultant can describe what’s available…..lots of possibilities….the future doesn’t have to be bleak. Good Luck!
