[jomjo75Participant]

Just occurred to me that whilst I may be a bit ahead of you with treatment, we are both making this journey together and I’m with you all the way, if that’s what you’d like.
Regards
Jo

[najmahParticipant]

Definitely Jo, thank you. It will be good to keep track on how we are both doing as we are on the same regime.

I woke with a splitting headache this morning so added a couple of paracetamol to my morning cocktail of drugs. I feel great today but realise it might be a few days before yesterdays treatment and all the daily meds start to take effect.

Regards,
Najmah

[najmahParticipant]

Hi Jo, I’m on day 5 of the lenalidomide tablets and have developed a very itchy scalp. I’ve read it can be a side effect and just wondered if you’d suffered from this too? If so do you have any remedies?

Thanks,

Najmah

[jomjo75Participant]

Hi
I’ve heard that can be a side effect although it’s not one I’ve suffered with.

That said, I’ve been suffering with an itchy scalp for several years (so nothing to do with myeloma or treatment) and my doctor was unable to come up with anything to help!

All I can do is tell you what I’ve found helpful for my itchy scalp.

Holland & Barrett’s Nature Spell Dry Scalp Formula (biotic serum) helped for a while. I had to use it daily.

I’m now using Body Shop’s Ginger Scalp Care and it’s working well for me. It does need to be used daily though I don’t remember every day and it’s still helping me.

I need to stress though that my itch is not a side effect; it’s caused by a dry non-flaky scalp.

I imagine you’re also taking Lenalidomide for 21 days and then you’ll have a 7-day break? If so, you may find the itch settles. Fingers crossed.

[rabbitParticipant]

Hi.

An itchy skin – including/especially an itchy scalp – is sometimes a Lenalidomide side effect.

It is not something that I experienced, but if you go to the Home page of this forum and search for “Itch”, it has been mentioned a few times.

In terms of what seems to have been effective for any itchy scalp, I have had a look to save time and effort:
– Pam said “Now taking antihistamines which have helped.”
– Shropshiremum said “I take loratadine [an antihisamine], and it definitely helps”
– Lilib said “I think the hospital pharmacy gave him some creams and shampoo (sorry, I cannot remember the names)”. You could ask you doctor or nurse?
. Maidmarion said “I also bought him some Aveeno sensitive shampoo, which doesn’t contain parabens”.

I hope that this is some help.

Regards
Rabbit

[najmahParticipant]

Thank you Jo and Rabbit.

I’d also read that antihistamines can help but don’t want to take anything without checking it out with the medical team so I’ll mention it to the nurse when I go to the Freeman on Tuesday. I have some Aveeno shampoo so I’ll use that tomorrow. Thanks for telling me what’s helped you too Jo, even though not caused by the Lenalidomide, those remedies might be helpful.

I’ve just checked my box of tablets and it says take one every day for 14 days, so maybe I’ll get a break then. It’s all still fairly new to me as I’ve only had one treatment session.

Regards,

Najmah

[Author]

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