[golden35Participant]

Hi

I’m new here, I’m a 35 year old female who has had a few recent health issues – iron defiency anaemia which is now resolved, ive had pleurisy this last month too and now on antibiotics. After lots of blood tests the doctors referred me to haematology due to a indication of mgus. At my initial appointment I’ve been told mgus is the only suspect at this time with a paraprotein of 7. This last few months has caused a lot of stress and anxiety (obviously) and I’m looking for a little support/advice please.

Are there any others that have been diagnosed at a young age with mgus?

Thank you

[mariposaParticipant]

Hi. I can’t claim to be diagnosed at a young age as I have just had my 70th birthday….but I understand all the anxiety and stress. I found out, like most people, when I had blood tests that found raised paraproteins.
Mgus is a strange thing to get your head around, it feels odd knowing that you’ve got this condition that nobody has heard of, with no symptoms, yet you have to be monitored every few months or so.
All the information that I have found says that you can have Mgus for many years and even if you should be one of the small number that go on to more serious things there are plenty of treatments available.
I was diagnosed last October, after the initial shock I am just getting on with life. I read something recently which said words to the effect of
“No outcome of any situation has ever been changed by the amount of worrying done before it ”
That helped me and I hope it will help you. Take care x

[golden35Participant]

Hi Mariposa

Thank you for your reply and a very happy 70th to you. My reasoning for asking about the age is purely as everything you read about it refers to it being found later in life! I’ve had a few weeks to get my head around it and I’m slowly getting there.
My current issue is reading into symptoms, because of the pleurisy I tick a few of the symptom boxes, I have a week of antibiotics left so I think my best thing would be to monitor how I feel once I have completed the course. I am currently keeping a health diary just to keep my mind clear and know I’m not going crazy!
Take care x

[mariposaParticipant]

You’re not going crazy 😜 I don’t know how long I’ve had it. Looking back lots of things make sense. Nothing to put your finger on, but a lot of unexplained little things..it always seemed to be me that had anything doing the rounds, otherwise OK except for high blood pressure and underactive thyroid. I often wonder if it’s long term medication that causes a lot of problems.
Keep doing what you’re doing and use this forum to get support from others who have gone through it x
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[golden35Participant]

Hi
Funnily enough I was also diagnosed woth an underactive thyroid after my son (nearly 9).
Thank you, I appreciate the support 🙂 take care x

[mulberryParticipant]

35 is very young to be diagnosed with MGUS, but a longitudinal study being done in Iceland IstopMM, gathering data from all the adult population over 40 who will agree to do it, has already shown that MGUS is more common than was believed.

Although the peak age for developing MM is around 70, there have been a few children diagnosed with the disease, let alone MGUS. Hopefully your paraprotein level will just stay stable, causing you no harm. I think it’s worth trying to keep inflammation down, I was diagnosed with hypothroidism (Hashimotos) at the same time as MM and I believe that the inflammatory processes involved in both, made both conditions significantly worse. Now my MM is stable I’ve had no further issues with my thyroid.

I’m another patient who definitely tries to save worry for when I know it’s needed, it’s a useful strategy in life in general although I suspect all of us were rocked to the core when we were diagnosed , whether that was with MGUS, Smoldering MM or active myeloma.

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