[stephfriedlParticipant]

Hi

I am new to this forum. My nan we think has got myeloma she has an appt next tues to see her consultant however due to her age and other health related problems they are not going to treat so is palliative. I just wondered what questions we need to ask on her appt? i have been reading a few things on this site will her bloods indicate how advanced the disease is? and what things do we need to act on if we have any problems? She has already has had a blood transfusion which seems to have perked her up a bit.

Many thanks

Steph x

[MinParticipant]

Hi Steph,
Sorry to hear your Nan is not in good health and may have mm too.
I think if you nan has other health problems then the mm may be the least of her problems, as her general health has to be reasonable to be able to withstand some of the more toxic drugs that are used to treat mm.
However never say never. Once she has had her appointment with consultant you may know more.
Paliative care often is more to do with pain relief then making the sufferer more comfortable and able to fight the next round. Lots of people with mm get blood transfusions regularly or blood products and are able be more comfortable and respond well.
Its difficult to be helpfull with little information to go on. Once you are clear about a diagnosis a myeloma nurse specialist will be appointed to look after your Nan and will guide you through what will happen next.
I Sincerely hope that she does not have it but hope you will come back and let us know how we can help. the free phone helpline is possibly your first port of call to put your mind at rest, answered by very able staff who are very well informed and can guide you through the process.
Regards
Min

[stephfriedlParticipant]

thank you Min very much will keep you posted on tuesdays appt although we are expecting the worst on tuesday main thing is for quality of life for my nan x

[tomParticipant]

Hi Steph

Sorry you have had to join this mad Band of folk, but a warm welcome to you and yours.

I wish you and your nan all the best for this Tuesday.

love Tom "Onwards and Upwards" xxx

[KWilsonParticipant]

Welcome. Re questions, I can't help there but I'm sure they will forumulate as the days go by and there is a lot to take in intially so I advise having a wee note book or similar so you can write it down as you go along.

xxxxxxxxxxx

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