[boogirlParticipant]

Dear Group

I was diagnosed with myeloma in September 2014. I am still in shock and upset about the diagnosis. I know very little of the cancer; what little I know I have gleaned it from this website.

The diagnosis is smoldering myeloma. The stats are haemoglobin 9.9 g/dL, white count 4.8 x 10^9/9L, neutrophils 1.6 x 10^9/L, platelets 245 x 10^9/L, creatinine and calcium normal, paraprotein 21 g/L, CT spine shows no lytic lesions. This is double Dutch to me, could someone explain in plan English what this means?

I have a history of meningioma. At present I have multiple meningiomas.

help me…..

[Anonymous]

Hello Boogirl,

I was diagnosed smoldering in October 2014 from a routine blood test and I am still having times of been extremely upset and then back to my normal self I think this is the normal feelings to start off with reading on this forum and i think everyone will be extremely helpful on this new journey in our lives we have been thrown into and answer our questions honestly as they have all been through these early days.

One thing my consultant told me was to keep as fit as possible and to try not to worry too much as this is a cancer where advancements are been made all the time.

Sending you a big hug

Helen

.

[martinebbageParticipant]

Hi Helen/ Boogirl

I was diagnosed in June 2014 lucky smouldering like you guy’s you know doubt have had all the tests. If you are like me you will be thinking all sorts of things in the early days my only advice is stick to this site as it will give you everything you need. I guess the questions we all have is when will MM get me? well the facts are you have 10% chance per year for the 01st 5 years drops to 3% per year after that. I guess you are on the same watching brief only treatment I have is Zometa a bone strengthening infusion that I will be having once per month for 2 years, I am told it will have little or no side effects. I see my specialist now every 9 weeks with bloods being taken the week before, hopefully the levels stay stable.

You will see on here some people have had MM for 19 years and still going !!! others less time it is so individual, helps if it is caught early like we have fortunately been please other factors I guess that I don’t understand. I think having a positive attitude and not letting it get on top of you, I will admit to the odd dark day but snap out of it as soon as I can. I have been on holiday booked next years I am just determined not to let it get the better of me. There is always someone worse.

Good luck keep positive

Martin

[boogirlParticipant]

H<span style=”font-size: 13px; line-height: 19px;”>ello Helen</span>

I am trying to keep positive about as you pointed out sometimes I actually forget about the cancer. Good day and bad days. I return the hug. We need to support each other on this journey.

[boogirlParticipant]

Hello Martin

I am still in the initial stage – every 3 months blood tests and the consultant. I also have inoperable brain tumours that another hospital is monitoring. I am a little stressed as there were recent changes. To be confirmed by MRI.

[john_mouldingyahoo-comParticipant]

I,m pretty much the same as far as the stats. The only one my consultant seems to be considering is the paraprotein and getting it as far as possible down. So at present I’m just taking my cue from him.

 

[HarmonyParticipant]

Hi,
So sorry that you have joined our gang. I was diagnosed in October 2013 and still struggle to accept it. I’m smouldering too. There are many upbeat people on the site who help to keep your spirits up – I’m trying to become one of them!x

[Author]

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