johnnym

  • Hi Andy,

    thanks for your reply. I see a respiratory consultant at the end of the month but this cough has been going on for a while and no-one seems to know why. Last explanation was that it must be the cancer irritating the lung.

    Nice to know that drugs can do it as well although SCT appears to be the preferred way.

    Keep, keeping on

    John

  • I have been told I cannot have SCT at the moment because I have a persistant cough which no one has been able to work out what is causing it. I have had a CT scan on the lungs and am waiting an appointment with a specialist.

    But is there an alternative to SCT if things don’t work out?

    John

  • Thanks for you reply. Other people  on the forum seem positive about the treatment too. Tendacy towards, at the moment, but will see. Im 61 so not much difference there, on my 5th cycle.

    John

  • hi Keith.

    I interested in your experience of SCT. I have just fininshed cycle 4 CDT and dr says I should think about SCT or not. It seems to involve being in  hospital for 3 weeks and a harsh chemo.

  • I,m pretty much the same as far as the stats. The only one my consultant seems to be considering is the paraprotein and getting it as far as possible down. So at present I’m just taking my cue from him.

     

  • Thanks for replying mavis. I have had breaks . Where I work I am afraid of picking up certain items because I feel they are on the edge of my weight lifting thresh hold. It would make a difference to me to have the confidence to pick them up, with care, without too much worry. I guess it may be a bit of trial and error. I have only just started on…[Read more]

  • I am taking infusions to improve my bone strength. How will I know when it is working so I can pick up something heavier?

  • Thanks to the replies. Mine isn’t due to nerves and doesn’t go. I might get a bit of respite if I cough something up but it soon comes back. And it started before the drugs as well.  I dont think its going so I will have to learn to live with it.

  • Has anyone got a cough that their dr says must be due to the cancer irritating the lungs. Ive had this cough for a while. I did a sputam check – nothing. Dr gave me antibiotics just in case – no difference so he says it must be the cancer irritating as there is nothing wrong with lung.  Had a CT scan previously.

    John

     

  • Back from infusion of Zoledronic acid. Painless really, just sat in a chair while saline and the zoledronic dripped in. Took more time than necessary today because i should have bloods done before hand. Am told will only take an hour next month.

    The infusion should help to fill in the holes in the bone so reducing the risk of breakage. Staff…[Read more]

  • Hi Chris,
    As far as the hiccups is concerned I was told to take the Metoclopramide tablets I have for sickness and nausea. These really helped if you have them too.

    The in fusions as ,I understand it, are to strengthen the bone. (1.30pm today).

    Let you know how I get on.
    John

  • john_mouldingyahoo-com changed their profile picture 9 years, 5 months ago

  • Hi Chris,

    thanks for posting. I’m a newbie and its good to see someone else at a comparative stage.

    I’m 60 and my story’s pretty much the same. Ribs going, vertebrate breaking and initially thinking osteoparosis.  On second cycle of CDT at the moment, due a blood infusion tomorrow.

    Nice to see that someone else posting got the hiccups. That…[Read more]