[TharewoodParticipant]

Hi my name is Tracey and I was newly diagnosed June 2013. It’s been a roller coaster of emotions, firstly receiving the diagnosis which was devasting. Then the watching and waiting for the treatment to start which again left me in limbo. I am now on my 4 cycle of chemo and I entered a clinical trial also. I have remain very strong & positive and although I occasionly have a down day I am normal upbeat and strong as I have everything to live for. Sometimes I feel very isolated as I normally work full time and provide the support to my family both immediate and care for my elderly Mother. I have weakness in my legs & feel more tired than normal. I have found it difficult to slow down and let others support me, just wondered how other suffers feel about this. Would love to hear how others have handled their diagnosis. I haven’t had any great side effects for the medication as yet and I will be having a stem cell transplant next year around March/April time. I really miss work and will be glad when I’m strong enough to go back.

[CarolsymonsParticipant]

Hi Tracey
I finished the initial treatment 6 weeks ago but did find the 5th and 6th cycles the wort with very weak legs, shakiness, constipation and numbness (neuropathy) in my toes. I was off work for 7 months as I was diagnosed with a fractured collar bone but managed to return to work this last month off treatment. Staying home every day was doing my head in! Oh how I enjoyed being back at work which is at a high school in Southall London!

[CarolsymonsParticipant]

Whoops half of my post is missing I wonder why? Sooo right now I am in Hammersmith Hospital London as my cancer numbers rose after only 3 weeks off drugs,

[CarolsymonsParticipant]

I give up most of my post is missing again….damn! Administrators?

[dickbParticipant]

Hi Tracy,

Your emotions sound true to form, a number of us felt useless, a burden to others and in limbo, like you, I couldn’t slow down, my wife kept telling me to rest, we had a home help but I ended up doing things before she came to help – not very helpful but I had to do it so that I still had a sense of self worth.

You haven’t said how old you are? We all handle the diagnosis differently but emotionally we are all the same I believe, insecure, scared and feeling lost. However, as you can see with this forum, a number do develop a positive attitude and try not to let it totally control their lives. There are some fantastic, inspiring people on this site which I am sure you will meet in cyberspace. So, read on and let us help you.

Richard

[mhnevillParticipant]

Hi Tracy,

Welcome. Your response to the diagnosis and the treatment is quite normal. MM is hard to come to terms with and an ongoing battle. I do hope that the chemotherapy does its magic for you and that you progress steadily to a very successful SCT. Do be kind to yourself and find ways to make “being at home” more pleasant. I imagine you would find it very tiring to return to work just now.

All best wishes. Keep in touch.

Mavis

[TharewoodParticipant]

Dear all

Thank you for your feedback, it’s really helpful to finally speak to people who know what you are actually going through. I forgot about putting my age but I am 49yrs young. I have taken up some hobbies that I haven’t done in many years just to try and keep my mind off things & because there is only so much TV that you can watch. Once again thanks for your input, Stay Strong, Stay Positive xx

[Author]

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