[Annie1Participant]

Hi,
I have been diagnosed with Multiple Myeloma after having blood tests biopsies over the last two years.
I am devastated. I cant stop thinking why now as my children are only 2.5 and 6 years old.
My protein has gone up from 19 in november to 26 now. My kidneys bones etc are all ok but I have anaemia and vertigo.
My doctor has said that I will need to have chemo then a stem cell transplant and i am absolutely petrified! Especially after reading about how the stem cell transplant is done through my chest!! 🙁
They are holding off from treatment for now as i don't have any other problems but i think that they want to start treatment sooner rather than later.
Is there a chance that protein levels can reduce naturally?
I so scared.
Antoinette

[AliParticipant]

Hi Antoinette

Im Alison, its my Mum with MM, she was diagnosed last Nov aged 57.

I can only imagine how you are feeling about your diagnosis, we are a similar age im 37 I have 2 boys aged 8 and 5 and I know that as a Mum you worry about the kids rather than yourself.

Im sure you will find this site to have all the information you need and the gang on this forum are very supportive and will try and answer any questions you have, also you can phone Ellen the nurse (i have done so a few times and she is lovely).

I hope it reassures you a little to know that my Mum started her treatment in December, she has had 5 cycles of Revlamid, Dexamethasone and Cyclophosphomide and whilst during some parts of each month was a little shaky and tired, it really was not as bad as she feared. In fact she continued to say she felt better than she had done in ages! She kept a diary of how she was feeling day to day so the next month she could anticipate how she would be feeling and plan her time accordingly. So the treatment worked rather well ( achieving a very good partial remission) and now moves on to SCT in a couple of weeks….so watch this space!

Please keep in touch

Big hugs to you and your kids 🙂

Alison

[VickiParticipant]

Hi Antoinette,
🙁
I believe the standard phrase is welcome to the forum!. My partner Collin who is 55 was diagnosed last October and it was a real bolt out of the blue. I'm sorry that you have been diagnosed with mm. Scared I can understand!!!!. I'm scared for Colin and spend each day worrying. However on a more positive note. When we received all the information about the medication etc and the info about the SCT we were really scared and ovewhelmed. But Colin was determined to do it and we have faced it together- scared but know it's an option for getting better.there have been some difficult time but he is now on cycle 7 and the numbers have all come down thank goodness. the SCT date we don't know yet.there are loads of examples on the forum of people who have had the SCT and are doing very well 🙂

Try not to look too far ahead, tackle each bit in small chunks. Easy for me to say I know. Otherwise it's too hard. Do you think a nurse/counsellor would help for you to talk to?, the best thing is to remember there are lots and lots of new drugs coming on line and different treatments. Also don't read loads of websites. I did that for Colin for months and I've stopped because it scared me witless! This site and forum is great because you can share concerns, thoughts and experiences.

I don't know if the pps would come down naturally.

Take care

Vicki &Colin x

[andygParticipant]

Hi Antoinette.
First of all welcome to the forum. None of us want to be here. You'll find lots of support and advice here in your journey and battle against MM. Everyone's journey and treatment is different. It's a very individual disease.
Myself I was diagnosed in October 2011 and I'm or rather my paraproteins are proving to be a challenge to the medics. Others on this forum sail through to a stem cell transplant and get years of remission. Hopefully you'll follow the later course.
There are new treatments coming along all the time.
Please feel free to us the forum to express your emotions, shout, scream, and even laugh you will feel better letting it all out and you'll always get replies and advice.

Take care
Wishing you every success in your battle against MM
Andy xx

[eveParticipant]

Hi Antoinette

Welcome to this site,we will help you all we can,there are lots of people on here who have been through the same thing as you,or who are carers to those people,it is very scary all the information you have to take in,medical jargon and worry.
Try not to look to far ahead and take one day at a time,forget SCT for now just try to cope with your treatment.
When you say about SCT through your chest it sounds awful,when it,s not,they put a line in between your should and breast,and its just like having bloods back,they use it for meds,plus fluids,so do not think that far ahead yet,it could be a long time before this goes ahead,and by that time you will be use to having injections and medication.
You will need support around you,and you can get advice and help,so ask at the hospital. Eve

[tomParticipant]

Hi Antoinette

A Warm welcome to your site :-D.
Sorry you have got MM I was told in 2009 had 5 courses of CTD then stem cell transplant December 2009 am now in remission and doing well, am a iccle bit older than you am 56 soon to be 57 😎

The Harvest and return of my Stem cells was all done through my Femoral line, and to be honest all the treatment I had was am pleased to say PAIN FREE 😀

Good Luck on your Road to Remission with MM

Love and Hugs

Tom "Onwards and Upwards" xx

[Annie1Participant]

Hi Alison, Vicki, Andy, Eve & Tom,

Thank you for such a warm welcome! 🙂

I have have been a nervous wreck and can't see to stop crying! When I look at my kids i cant help feeling angry as to why this is happening now??! On top of it all my mum is in the second stages of heart failure – she's only 53!

I also have been diagnosed with meniere's disease – although not officially as i am waiting for an appointment to have a water test done to my ear. Im taking bethahistine for it at the moment to help with the dizziness. I cant drive at the moment adding to my frustrations.

All of my problems started when i was 6 months pregnant with my son and i suffered with Vertigo and had it for 7 weeks! Then when my son was 4 months old i started to feel very tired felt like i wasn't coping with two small children. So i went to my GP and she did full blood counts. My blood test came back and i was referred to haematology. Long story short, I had a bone marrow biopsy it came back with MGUS. Not knowing much about It my consultant at the time said that this was very good news but they wanted to keep an eye.

I kept having more blood tests every 3 months then my paraprotien went up just slightly over the MGUS level. I had another Bone marrow biopsy and was diagnosed with smouldering myeloma…. I was then referred to Barts and had more tests as my consultant there wasn't convinced that this was the case as all other functions were ok. After more months of testing – Blood tests, MRI and PET scans I was diagnosed on Monday. I have also been told that the Anaemia due to the MM could be causing the dizziness / meniere's to be worse.

Im trying to put it to the back of my mind but is difficult as im not feeling well with the dizziness and feeling lightheaded, tired ALL THE TIME, I feel like im in another aurora! Has anyone else suffered with vertigo or any dizziness before starting treatment?
Its hard trying to get on with my day to day, school run, house chores etc… My husband works full time 6 – 7 days a week and is self-employed – we're struggling as it is with me being unwell and unable to work!

Thank you all for your advice & warm wishes!

I feel like i have gained a new family! 😀

Love to you all

Antoinette xxxx

Alison
I will give Ellen a call. Im glad your mum feels better and good luck with the SCT. Will keep in touch xx

Vicki
I think your right… I do tend to think way to far ahead…. and WORRY! I just wish my dizzy spells would go away and the tiredness then at least i could try and forget about it. Im happy for you that your husband is doing well. I don't think its sunk in for mine. I mention it he brushes it off…. I don't think he is coping well either xx

Andy
Im like you! my consultant said that im known as the mystery lady when the doctors have their meeting.
My Paraprotiens were 19 in Nov and are 26 now but all my other bits like calcium, kidneys, no holes in my bones or lesions etc are ok. Do you know if paraprotiens could naturally reduce? xx

Eve
Thank you for reassuring me that SCT is not as bad. Do they sedate you for the procedure? I was sedated for my second bone marrow biopsy as i had a rough time with the first one. :-/ I read about it and saw the diagram on the info page. I have to say i nearly fell off my chair when I looked at the diagram. I couldn't sleep last night as every time I closed my eyes it was there! I know, who would have thought that I have two kids! my mum never thought that i would LOL! xx

Tom
Im glad that you are doing well after your treatment. And im even more pleased that your SCT was pain free!
I still remember my Bone marrow biopsies – give me child birth any day without any pain relief! Thats how bad it was for me. Keep in touch xx
Ps – age is nothing but a number! 😉

[Annie1Participant]

Hi Alison, Vicki, Andy, Eve & Tom,

Thank you for such a warm welcome!

I have have been a nervous wreck and can't see to stop crying! When I look at my kids i cant help feeling angry as to why this is happening now??! On top of it all my mum is in the second stages of heart failure – she's only 53!

I also have been diagnosed with meniere's disease – although not officially as i am waiting for an appointment to have a water test done to my ear. Im taking bethahistine for it at the moment to help with the dizziness. I cant drive at the moment adding to my frustrations.

All of my problems started when i was 6 months pregnant with my son and i suffered with Vertigo and had it for 7 weeks! Then when my son was 4 months old i started to feel very tired felt like i wasn't coping with two small children. So i went to my GP and she did full blood counts. My blood test came back and i was referred to haematology. Long story short, I had a bone marrow biopsy it came back with MGUS. Not knowing much about It my consultant at the time said that this was very good news but they wanted to keep an eye.

I kept having more blood tests every 3 months then my paraprotien went up just slightly over the MGUS level. I had another Bone marrow biopsy and was diagnosed with smouldering myeloma…. I was then referred to Barts and had more tests as my consultant there wasn't convinced that this was the case as all other functions were ok. After more months of testing – Blood tests, MRI and PET scans I was diagnosed on Monday. I have also been told that the Anaemia due to the MM could be causing the dizziness / meniere's to be worse.

Im trying to put it to the back of my mind but is difficult as im not feeling well with the dizziness and feeling lightheaded, tired ALL THE TIME, I feel like im in another aurora! Has anyone else suffered with vertigo or any dizziness before starting treatment?
Its hard trying to get on with my day to day, school run, house chores etc… My husband works full time 6 – 7 days a week and is self-employed – we're struggling as it is with me being unwell and unable to work!

Thank you all for your advice & warm wishes!

I feel like i have gained a new family!

Love to you all

Antoinette xxxx

Alison
I will give Ellen a call. Im glad your mum feels better and good luck with the SCT. Will keep in touch xx

Vicki
I think your right… I do tend to think way to far ahead…. and WORRY! I just wish my dizzy spells would go away and the tiredness then at least i could try and forget about it. Im happy for you that your husband is doing well. I don't think its sunk in for mine. I mention it he brushes it off…. I don't think he is coping well either xx

Andy
Im like you! my consultant said that im known as the mystery lady when the doctors have their meeting.
My Paraprotiens were 19 in Nov and are 26 now but all my other bits like calcium, kidneys, no holes in my bones or lesions etc are ok. Do you know if paraprotiens could naturally reduce? xx

Eve
Thank you for reassuring me that SCT is not as bad. Do they sedate you for the procedure? I was sedated for my second bone marrow biopsy as i had a rough time with the first one. I read about it and saw the diagram on the info page. I have to say i nearly fell off my chair when I looked at the diagram. I couldn't sleep last night as every time I closed my eyes it was there! I know, who would have thought that I have two kids! my mum never thought that i would LOL! xx

Tom
Im glad that you are doing well after your treatment. And im even more pleased that your SCT was pain free!
I still remember my Bone marrow biopsies – give me child birth any day without any pain relief! Thats how bad it was for me. Keep in touch xx
Ps – age is nothing but a number!

[Annie1Participant]

Hi Alison, Vicki, Andy, Eve & Tom,

Thank you for such a warm welcome!

I have have been a nervous wreck and can't see to stop crying! When I look at my kids i cant help feeling angry as to why this is happening now??! On top of it all my mum is in the second stages of heart failure – she's only 53!

I also have been diagnosed with meniere's disease – although not officially as i am waiting for an appointment to have a water test done to my ear. Im taking bethahistine for it at the moment to help with the dizziness. I cant drive at the moment adding to my frustrations.

All of my problems started when i was 6 months pregnant with my son and i suffered with Vertigo and had it for 7 weeks! Then when my son was 4 months old i started to feel very tired felt like i wasn't coping with two small children. So i went to my GP and she did full blood counts. My blood test came back and i was referred to haematology. Long story short, I had a bone marrow biopsy it came back with MGUS. Not knowing much about It my consultant at the time said that this was very good news but they wanted to keep an eye.

I kept having more blood tests every 3 months then my paraprotien went up just slightly over the MGUS level. I had another Bone marrow biopsy and was diagnosed with smouldering myeloma…. I was then referred to Barts and had more tests as my consultant there wasn't convinced that this was the case as all other functions were ok. After more months of testing – Blood tests, MRI and PET scans I was diagnosed on Monday. I have also been told that the Anaemia due to the MM could be causing the dizziness / meniere's to be worse.

Im trying to put it to the back of my mind but is difficult as im not feeling well with the dizziness and feeling lightheaded, tired ALL THE TIME, I feel like im in another aurora! Has anyone else suffered with vertigo or any dizziness before starting treatment?
Its hard trying to get on with my day to day, school run, house chores etc… My husband works full time 6 – 7 days a week and is self-employed – we're struggling as it is with me being unwell and unable to work!

Thank you all for your advice & warm wishes!

I feel like i have gained a new family!

Love to you all

Antoinette xxxx

Alison
I will give Ellen a call. Im glad your mum feels better and good luck with the SCT. Will keep in touch xx

Vicki
I think your right… I do tend to think way to far ahead…. and WORRY! I just wish my dizzy spells would go away and the tiredness then at least i could try and forget about it. Im happy for you that your husband is doing well. I don't think its sunk in for mine. I mention it he brushes it off…. I don't think he is coping well either xx

Andy
Im like you! my consultant said that im known as the mystery lady when the doctors have their meeting.
My Paraprotiens were 19 in Nov and are 26 now but all my other bits like calcium, kidneys, no holes in my bones or lesions etc are ok. Do you know if paraprotiens could naturally reduce? xx

Eve
Thank you for reassuring me that SCT is not as bad. Do they sedate you for the procedure? I was sedated for my second bone marrow biopsy as i had a rough time with the first one. I read about it and saw the diagram on the info page. I have to say i nearly fell off my chair when I looked at the diagram. I couldn't sleep last night as every time I closed my eyes it was there! I know, who would have thought that I have two kids! my mum never thought that i would LOL! xx

Tom
Im glad that you are doing well after your treatment. And im even more pleased that your SCT was pain free!
I still remember my Bone marrow biopsies – give me child birth any day without any pain relief! Thats how bad it was for me. Keep in touch xx
Ps – age is nothing but a number!

[Annie1Participant]

Hi Alison, Vicki, Andy, Eve & Tom,

Thank you for such a warm welcome!

I have have been a nervous wreck and can't see to stop crying! When I look at my kids i cant help feeling angry as to why this is happening now??! On top of it all my mum is in the second stages of heart failure – she's only 53!

I also have been diagnosed with meniere's disease – although not officially as i am waiting for an appointment to have a water test done to my ear. Im taking bethahistine for it at the moment to help with the dizziness. I cant drive at the moment adding to my frustrations.

All of my problems started when i was 6 months pregnant with my son and i suffered with Vertigo and had it for 7 weeks! Then when my son was 4 months old i started to feel very tired felt like i wasn't coping with two small children. So i went to my GP and she did full blood counts. My blood test came back and i was referred to haematology. Long story short, I had a bone marrow biopsy it came back with MGUS. Not knowing much about It my consultant at the time said that this was very good news but they wanted to keep an eye.

I kept having more blood tests every 3 months then my paraprotien went up just slightly over the MGUS level. I had another Bone marrow biopsy and was diagnosed with smouldering myeloma…. I was then referred to Barts and had more tests as my consultant there wasn't convinced that this was the case as all other functions were ok. After more months of testing – Blood tests, MRI and PET scans I was diagnosed on Monday. I have also been told that the Anaemia due to the MM could be causing the dizziness / meniere's to be worse.

Im trying to put it to the back of my mind but is difficult as im not feeling well with the dizziness and feeling lightheaded, tired ALL THE TIME, I feel like im in another aurora! Has anyone else suffered with vertigo or any dizziness before starting treatment?
Its hard trying to get on with my day to day, school run, house chores etc… My husband works full time 6 – 7 days a week and is self-employed – we're struggling as it is with me being unwell and unable to work!

Thank you all for your advice & warm wishes!

I feel like i have gained a new family!

Love to you all

Antoinette xxxx

Alison
I will give Ellen a call. Im glad your mum feels better and good luck with the SCT. Will keep in touch xx

Vicki
I think your right… I do tend to think way to far ahead…. and WORRY! I just wish my dizzy spells would go away and the tiredness then at least i could try and forget about it. Im happy for you that your husband is doing well. I don't think its sunk in for mine. I mention it he brushes it off…. I don't think he is coping well either xx

Andy
Im like you! my consultant said that im known as the mystery lady when the doctors have their meeting.
My Paraprotiens were 19 in Nov and are 26 now but all my other bits like calcium, kidneys, no holes in my bones or lesions etc are ok. Do you know if paraprotiens could naturally reduce? xx

Eve
Thank you for reassuring me that SCT is not as bad. Do they sedate you for the procedure? I was sedated for my second bone marrow biopsy as i had a rough time with the first one. I read about it and saw the diagram on the info page. I have to say i nearly fell off my chair when I looked at the diagram. I couldn't sleep last night as every time I closed my eyes it was there! I know, who would have thought that I have two kids! my mum never thought that i would LOL! xx

Tom
Im glad that you are doing well after your treatment. And im even more pleased that your SCT was pain free!
I still remember my Bone marrow biopsies – give me child birth any day without any pain relief! Thats how bad it was for me. Keep in touch xx
Ps – age is nothing but a number!

[Annie1Participant]

Hi Alison, Vicki, Andy, Eve & Tom,

Thank you for such a warm welcome!

I have have been a nervous wreck and can't see to stop crying! When I look at my kids i cant help feeling angry as to why this is happening now??! On top of it all my mum is in the second stages of heart failure – she's only 53!

I also have been diagnosed with meniere's disease – although not officially as i am waiting for an appointment to have a water test done to my ear. Im taking bethahistine for it at the moment to help with the dizziness. I cant drive at the moment adding to my frustrations.

All of my problems started when i was 6 months pregnant with my son and i suffered with Vertigo and had it for 7 weeks! Then when my son was 4 months old i started to feel very tired felt like i wasn't coping with two small children. So i went to my GP and she did full blood counts. My blood test came back and i was referred to haematology. Long story short, I had a bone marrow biopsy it came back with MGUS. Not knowing much about It my consultant at the time said that this was very good news but they wanted to keep an eye.

I kept having more blood tests every 3 months then my paraprotien went up just slightly over the MGUS level. I had another Bone marrow biopsy and was diagnosed with smouldering myeloma…. I was then referred to Barts and had more tests as my consultant there wasn't convinced that this was the case as all other functions were ok. After more months of testing – Blood tests, MRI and PET scans I was diagnosed on Monday. I have also been told that the Anaemia due to the MM could be causing the dizziness / meniere's to be worse.

Im trying to put it to the back of my mind but is difficult as im not feeling well with the dizziness and feeling lightheaded, tired ALL THE TIME, I feel like im in another aurora! Has anyone else suffered with vertigo or any dizziness before starting treatment?
Its hard trying to get on with my day to day, school run, house chores etc… My husband works full time 6 – 7 days a week and is self-employed – we're struggling as it is with me being unwell and unable to work!

Thank you all for your advice & warm wishes!

I feel like i have gained a new family!

Love to you all

Antoinette xxxx

Alison
I will give Ellen a call. Im glad your mum feels better and good luck with the SCT. Will keep in touch xx

Vicki
I think your right… I do tend to think way to far ahead…. and WORRY! I just wish my dizzy spells would go away and the tiredness then at least i could try and forget about it. Im happy for you that your husband is doing well. I don't think its sunk in for mine. I mention it he brushes it off…. I don't think he is coping well either xx

Andy
Im like you! my consultant said that im known as the mystery lady when the doctors have their meeting.
My Paraprotiens were 19 in Nov and are 26 now but all my other bits like calcium, kidneys, no holes in my bones or lesions etc are ok. Do you know if paraprotiens could naturally reduce? xx

Eve
Thank you for reassuring me that SCT is not as bad. Do they sedate you for the procedure? I was sedated for my second bone marrow biopsy as i had a rough time with the first one. I read about it and saw the diagram on the info page. I have to say i nearly fell off my chair when I looked at the diagram. I couldn't sleep last night as every time I closed my eyes it was there! I know, who would have thought that I have two kids! my mum never thought that i would LOL! xx

Tom
Im glad that you are doing well after your treatment. And im even more pleased that your SCT was pain free!
I still remember my Bone marrow biopsies – give me child birth any day without any pain relief! Thats how bad it was for me. Keep in touch xx
Ps – age is nothing but a number!

[Annie1Participant]

Hi Alison, Vicki, Andy, Eve & Tom,

Thank you for such a warm welcome!

I have have been a nervous wreck and can't see to stop crying! When I look at my kids i cant help feeling angry as to why this is happening now??! On top of it all my mum is in the second stages of heart failure – she's only 53!

I also have been diagnosed with meniere's disease – although not officially as i am waiting for an appointment to have a water test done to my ear. Im taking bethahistine for it at the moment to help with the dizziness. I cant drive at the moment adding to my frustrations.

All of my problems started when i was 6 months pregnant with my son and i suffered with Vertigo and had it for 7 weeks! Then when my son was 4 months old i started to feel very tired felt like i wasn't coping with two small children. So i went to my GP and she did full blood counts. My blood test came back and i was referred to haematology. Long story short, I had a bone marrow biopsy it came back with MGUS. Not knowing much about It my consultant at the time said that this was very good news but they wanted to keep an eye.

I kept having more blood tests every 3 months then my paraprotien went up just slightly over the MGUS level. I had another Bone marrow biopsy and was diagnosed with smouldering myeloma…. I was then referred to Barts and had more tests as my consultant there wasn't convinced that this was the case as all other functions were ok. After more months of testing – Blood tests, MRI and PET scans I was diagnosed on Monday. I have also been told that the Anaemia due to the MM could be causing the dizziness / meniere's to be worse.

Im trying to put it to the back of my mind but is difficult as im not feeling well with the dizziness and feeling lightheaded, tired ALL THE TIME, I feel like im in another aurora! Has anyone else suffered with vertigo or any dizziness before starting treatment?
Its hard trying to get on with my day to day, school run, house chores etc… My husband works full time 6 – 7 days a week and is self-employed – we're struggling as it is with me being unwell and unable to work!

Thank you all for your advice & warm wishes!

I feel like i have gained a new family!

Love to you all

Antoinette xxxx

Alison
I will give Ellen a call. Im glad your mum feels better and good luck with the SCT. Will keep in touch xx

Vicki
I think your right… I do tend to think way to far ahead…. and WORRY! I just wish my dizzy spells would go away and the tiredness then at least i could try and forget about it. Im happy for you that your husband is doing well. I don't think its sunk in for mine. I mention it he brushes it off…. I don't think he is coping well either xx

Andy
Im like you! my consultant said that im known as the mystery lady when the doctors have their meeting.
My Paraprotiens were 19 in Nov and are 26 now but all my other bits like calcium, kidneys, no holes in my bones or lesions etc are ok. Do you know if paraprotiens could naturally reduce? xx

Eve
Thank you for reassuring me that SCT is not as bad. Do they sedate you for the procedure? I was sedated for my second bone marrow biopsy as i had a rough time with the first one. I read about it and saw the diagram on the info page. I have to say i nearly fell off my chair when I looked at the diagram. I couldn't sleep last night as every time I closed my eyes it was there! I know, who would have thought that I have two kids! my mum never thought that i would LOL! xx

Tom
Im glad that you are doing well after your treatment. And im even more pleased that your SCT was pain free!
I still remember my Bone marrow biopsies – give me child birth any day without any pain relief! Thats how bad it was for me. Keep in touch xx
Ps – age is nothing but a number!

[tomParticipant]

Hi Antoinette

Hey am Sorry you are teary 🙁 go my way girl (it works for me) cry in shower you dont notice so much and more important I felt that if I have this MM it wont take me so I told my Consultant I dont want to wait (he did say we could pospone treatment) and i want to throw whatever he could while I was still young and fit (ish lol) and that he did and for that I am eternally grateful to him.

Keep your mind and body strong and dont let it beat you.

Love and Hugs

Tom "Onwards and Upwards"

Ps a lot of us are on F/B dont know if you are??
PPS I forgot about BMB (ouch) nearly all pain free 😀

[CarolBradley1Participant]

Hi Antoinette

I am really sorry that I have to welcome you to this site – but a very sympathetic hello anyway.

I understand that you are absolutely shocked to your core but you have found here a very good site where you will find lots of the information, help and support your going to need.

If it helps, I was diagnosed with this rotten illness in 2005 and was monitored but no treatment until 2011 when I started chemo and then a stem cell transplant and a further small dose of Revlimid for a few months. I am now in REMISSION and my pp are ZERO. Although I do have some discomfort and get tired I still do all my own housework, cook etc. and ride two very big, active horses when I can and I am 57 so I don´t think that is too bad!

During the five years without treatment my levels went up and down (once they went up to 26 and 8 weeks later were back down to 14). So in answer to your question, in my case my pp levels often went up and down.

I know you poor brain is twirling right now but could you ask your specialist about the Revlimid trial – called the Myeloma 11 I think. I have been on it and that was how I was able to have Revlimid – just a thought.
Anyway, the people on here have lots and lots of experience in everything both big and small. I have found the main thing is that you can come on here and talk to people who really understand how this thing affects you in a way that you can´t really talk to family and freinds bacause you don´t want to upset your loved ones. The lovely people are so warm and freindly.

I hope that once they sort the dizziness our you will feel a bit les panicky and positive as I know how horrid it is to have the vertigo and how difficult it was to cope with anything whilst I had it.
Don´t hesitate to ask anything you want to – we are all happy to help where we can or just to listen when you get those days when you feel you can´t cope (we all have had them!)

My prayers and very best wishes go out to you on your journey to remission.

Love Carol xxx

[BADGERParticipant]

Hello Antionette

Its ok to cry your life has been turned upside down Why me! I am still asking that I still cry sometimes, mostly at night that seems to be the darkest times
you are still young and there are now so many new treatment being discoved my consultant is hopeful that in the not to distant future MM will become a chronic illness that can be managed we keep our fingers crossed for that if you can find a MM support group near where you live it is so helpful to go to meetings with other people in the same situation I live in Hertfordshire we have one in Welwyn garden city Chin up
Love Jo x

[Author]

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