[rosaryParticipant]

I just went to pick up my next couple of Revlimid cycles ( maintenance post SCT ) and was informed by the pharmacy that they we now supplying Sandoz Lenalidomide instad of Revlimid

Few questions for forum

1. Has anyone made this switch ( Revlimid to Sandoz Lenalidomide ) and noticed any change to side effects

2. Can the NHS impose this change of patients? Apparently I should of been consented for this change but nothing was mentioned by the Dr when prescribing

3. I spoke to to CCN who mentioned all Myeloma patients were being switched ( cost savings )

[mulberryParticipant]

I haven’t used lenalidomide manufactured by Sandoz, but have been using generic lenalidomide for 3 1/2 years. (Cipla & Dr Reddys).
When I first used it I had samples of both tested by mass spectrometry. These showed near identical amounts of lenalidomide, with slightly different fillers.
Fillers cause slightly different side effects potentially, but I have experienced the same (minor) ones I had whilst on Revlimid.
I hope this reassures you, although like you I would have wanted to be warned about the change.

[rosaryParticipant]

thanks @mulberry , we have had many exchanges over generics and I hope you remain well!

My post was because this appears a big change by the NHS that might have ramifications for those that have opted to source generic lenalidomide outside of the NHS as I know you have

For those being prescribed Revlimid within the NHS this appears a change being forced on patients hence my question about #patientrights to have this change imposed.

Let see if others have comments although this may be a very recent policy change

[kh0305Moderator]

Hi Rosary
Thank you for posting this. So far my dad has still been receiving Revlimid with no mention of a change, though having said that it wouldn’t be the first time he’s had a change of meds arrive with no prior warning given!
We will keep an eye out in case of any changes. Good to hear Mulberry that you’ve not experienced any difference in side effects on the generic version though.

I’m not sure where patients stand regarding rights. My guess is that if the drug is in effect the same, then there is little comeback but if you do find out more regarding this, would be interested to hear more.
Thanks xx

[mulberryParticipant]

I think potentially some patients may react differently to the fillers used in any prescription drug. I take a generic thyroid drug which is fine for me, but I know a few patients have side effects from it, and need to be prescribed the original, more expensive, version.
Conversely I suppose it’s possible that we might have fewer side effects from the fillers in a specific generic drug.
Something for our doctors to keep an eye on…

[Author]

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