[valbrewsterParticipant]

Hi, saw the Neurologist who gave me a thorough physical examination and he seemed happy with me. He sent me for a blood test to test for lack of certain vitamins and enzymes(?), the nurse took 8 vials! Am now due for an EMG, all I know is that electrodes are put on/in your legs to check the muscles, he said it wouldn't hurt, so asked him if he had had the procedure of course he hasn't. This procedure takes place on 15th. Have stopped the Thalidomide and the night cramps have abated, I know the cold doesn't help, the snow and ice doesn't help, but am keeping my legs warm as much as I can. Will be glad to get the final results as I don't like being off any meds, especially as the low dose Thal. has kept the beast away since my last SCT back in November 2008.

[mhnevillParticipant]

Hi Val

You must be relieved to have got rid of the night cramps. Hope you get good results from the tests soon so you can restart your maintainence.

Very best wishes.

Mavis

[PerkymiteParticipant]

Just after I had my SCT, Dec 09, I had night cramps a lot now it is just the occasional cramp in my legs at night.

I do suffer from very cold legs at night and if I stick one out from under the duvet I am in trouble, hence the reason I am sitting at my computer at this hour 🙁 .

Kindest regards vasbyte

David

[valbrewsterParticipant]

Had my EMG yesterday, instead of 15th, for some unknown reason I had remembered the wrong date. The procedure wasn't too bad and it was strange to be able to listen to my muscles. Of course, I got cramp in the right calf during the procedure and the Doctor said she could hear the cramping! See the Neurologist on 23rd, can't get an early appointment as it is half term next week and he is on holiday. At least the test is now out of the way, even if my legs feel sore from where the doctor inserted the needles. The doctor told me I can start up my pilates class and the keep fit for over 50s class. Have missed doing my pilates class as the exercises help with the mid back pain.

[valbrewsterParticipant]

Got the results from the EMG, Neurologist told me I have mild neuropathy, no surprise there, it maybe mild but the cramps are severe. He has prescribed 0.50mg of clonazepan to take at night. Also to restart the 50mg of Thal. Will see him again in 6 weeks time to see how things work out. I will start on the new regime next week as we are off to Venice on Tuesday and if there are going to be any side effects rather they happen at home not whilst we are away. Really looking forward to our trip.

Will let you know how it all pans out. Best wishes

[tomParticipant]

Hi Valerie
Not sure how I missed this post?

But am Pleased it is getting sorted out, have a great time in Venice (Am jel)

Love Tom "Onwards and Upwards" xx

[ElizellenParticipant]

Have a lovely time in Venice, Val!

I went there a couple of times in the 60's and would love to revisit as there was so much to see in such a small area.

Eliz
XX
X

[Author]

Posts