HI Hall this is my first post .iwas diagnosed with smouldering Myeloma Feb 2018 showing 20% plasma cell infiltrate Parapprotein 8.1g/l lammbalight chains 399 . in January was also diagnosed amyloidosis with amyloid in sort tissue and spleen .i started V C D treatment and am now at the end of my 3rd cycle. results after first cycle were very positive paraprotein down from 8.1 to 6.7 and light chains down to 175 from 565 after cycle 2 and half way though cycle 3 results not so positive paraprotein 5.5 more worryingly light chains up to 275 .reley struggling to get appointment with consultsant to discuss what it means is it not working do i need to try something different can we thought in something else .I an booked in at the royal Marsdons in London in October because first results were so promising , now feeling very low after positive start and being told its all going really good IM 52 have 2 teenage boys and a demanding job witch is on hold and the moment finding sleeping very difficult and concentration levels all over the place .was wondering if anyone have had similar experiences with vcd treatment and what action was taken ,whats next .Seems like they just what to carry on with the same at the moment but i feel need to be more proactive thanks for reading paul
