Hi everyone,
My dad has been off treatment (RCD) since April. He was on the Myeloma XI Trial and struggled with Revlimid. As his PP rose by 1 whilst on the trial it was considered as progression so was switched to Velcade. Although he tolerated this better it didn't really shift his PP. He started at 14 on diagnosis and it only dropped to 7 after treatment.
His PP is now 9 and his hb has dropped from 10.0 to 9.5 in 6 weeks. Dand ad is 74 so not eligible for Stem Cell. I am obviously very concerned and worried that if this is a sign of heading towards relapse, this affects his overall prognosis. Has anyone else had experience of "stubborn" Myeloma and your general outcome?
Many thanks
Michelle x
michelleS 12 years ago.