[HelenParticipant]

Dear Dai
It's good to know someone is keeping a good eye on you at the hospital, I hope you get some answers soon. I've been back on the Revlimid for 2 months now, no pain so far but it is already playing havoc with my guts again.
Love Helen

[tmcParticipant]

Hi Dai
I feel so sorry for you and your dreadful 10 weeks.
I do hope the anti biotics kick in and help you out until the GI crew can solve your problems.
Helen
Sorry to hear you also have GI problems is it interferring with your work day?

Love Teresa.

[DaiCroParticipant]

Thank you Theresa,

The a-b's are working at the moment but I am still feeling washed out. I have had to put off a visit from my little sister and nephew at the last moment (tomorrow – Monday) because she is taking a-b's for a viral infection caused by a tooth access… I just dare not risk it with my Neutrofils down to 1.6 from 2.5. 🙁

I have a couple of friends from Fishguard, currently in North Yorkshire in their camper van who want to drop in for a couple of hours tomorrow afternoon on the way home… they assure me they are healthy and germ free… so I have said yes. It's difficult but I have to judge each case carefully. If they turn up sneezing or coughing etc., I will instantly show them the door. I am not paranoid… I am way beyond that.8-) 😉

Dai.

[AliParticipant]

Hi Dai

I am pleased the anti biotics seem to be working, but sorry you feel washed out still. Maybe a few more of Janets roasts will sort you out?:-)

Its awful having to vet people before you see them isnt it? in case they are germinated. My Mum had to tell my brother not to take his son (4 months old) as he had a cold and she felt terrible for doing so, but you just cant risk it. I got Mum some masks to keep at home, if in doubt she could ask visitors to put one on, but I doubt if she ever would- I think I would have to use them (just for the fun factor)>:-)

Love Ali x

[SueMParticipant]

hugsssss Dai,why did it take them so long to diagnose? didnt they send stool samples???!!
Im running on 50% 4 months post sct !wish i was as strong as the men seem to be post sct?? lol so im only reading bits of our forum past months
I hope you will soon be feeling your better self 🙂 Drink lots and rest and smile ur made of strong stuff 😀

Sue

[Author]

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