I’m sorry to hear of your husband’s experiences on the road to diagnosis.
I started treatment in January (4×3 week cycles) before having a SCT in June. I’m now having consolidation treatment (I’m participating in a trial and on a high risk pathway).
I don’t remember being told not to socialize (except for post-transplant until my blood counts improved), but I recall that I was cautious during my induction treatment, knowing that the treatment itself would cause my immunity to be more compromised than it already was. From September (when I was still in my 100 day post-SCT recovery period), I started to be a bit more relaxed and while still cautious, I became more inclined to throw caution to the wind. Unfortunately I ended up catching a bad cold virus from which I’m only just recovering nearly five weeks later! The bottom line is that it all depends on one’s attitude to risk and balancing that with enjoying life! Perhaps my visits to the sauna weren’t really advisable but it felt good at the time!
There is definitely a lot of useful information to help guide you on the MUK website and it’s clear that many if not most people with MM do continue to live fulfilled lives. Adjustments have to be made, but sometimes they can actually turn out to be positive.
Best of luck with the coming weeks.
S
