[mike59Participant]

vicki colin,
MRI tomorrow at gloucester,then back to see Dr Chown for results august 14.
nice to here from someone local,good luck for the future.
mike

[CarolBradley1Participant]

Hi Mike

I remember that feeling of limbo very well. I think a lot of it was shock in my case and I used to feel sick with worry for a week before every appointment with my specialist – as things settle down though and we got to learn more and more about what was going on we got into the routine and things seems less chaotic.
Please don´t feel guilty about the trolly – I wish I had know how to avoid the back problems before mine developed as I could have saved myself a lot of pain and time spent in MRI , CTC scanners amd having exrays done!
You take care and let us know how you get on when you have time.
Best of luck
Carol xxxx

[mhnevillParticipant]

Hi Mike

Like everyone else I am sorry you have had to join us, but take encouragement from us "oldies" that as diagnosis isn't the end of the world.

It is interesting that, at the moment, a lot of folk seem to be being diagnosed because of back problems. Do take care. I am glad your boss is being sympathetic, especially as the majority of people, ourselves included, have probably never heard of myeloma before.

Very best wishes.

Mavis

[JacquieParticipant]

Hi Mke

Sorry to hear you have recently been diagnosed with Myeloma. My partner Geoff is 54 and has recently been diagnosed, we also live in Gloucester and attend the EJU outpatients. Was wondering if you would like to meet Geoff and perhaps you can help each other through the treatment.

Jacquie

[alanwParticipant]

Hi Mike,

My name is Alan. I am 72 and was diagnosed with MM last December. This is my first post to this forum. I thought my experience might provide some comfort to you. After diagnosis I started the MM X1 clinical trial in January. It has been a remarkable success for me. After almost 6 months on self administered chemotherapy (lanolidomide, dexamethosone and cyclophosphamide) plus a number of support drugs and injection, I am now in remission. I had my 3 monthly check up yesterday and everything was still fine. Next check-up is October (though I have to have a further bone marrow biopsy next month – oh joy!)I know I have been lucky (so far) and I know also that things can change for the worse with this cancer, but for the moment I am relieved and thankful to the superb support I have had from the team at Stoke Mandeville Hospital, from my wife and family, from my church and from all my friends. As you will learn, MM is different for everyone who is diagnosed but I thought that you might be heartened by my experience.

[jmsmythParticipant]

Hi Alan what a lovely post. I am so glad that you are in remission, your journey with this awful disease is inspiring. My hubby is on 6 cycles of CDT – he is coming to the end of the third – halfway there. If everything goes ok they will start STC.

You sound as if all your support networks are in place. Good luck and long long long may remission continue.

Love jean x

[alanwParticipant]

Hi Jean, thanks for your good wishes. I really hope your husband has good results. Having just done 5 months of chemotherapy I know the road is hard but I pray he'll have a good result. Support from everyone he knows is so important, I found.

Alan

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