vicki colin,
MRI tomorrow at gloucester,then back to see Dr Chown for results august 14.
nice to here from someone local,good luck for the future.
mike

eliz,thanks for the reply i am starting with the trolley tomorrow but i feel a bit of a fraud as not in a lot of pain, thanks again and look after yourself.
mike

Thanks Carol,

It's good to hear other people's experiences and understand a bit more about the disease. Good to hear that people are still living normal lives.

The frustrating thing at the moment is it just feels like being in limbo – waiting to see the specialist, waiting for scans, waiting for tests results…

Many thanks again

Mike

Thanks so much Andy and Tom,

Very grateful for all the support. I will definitely have a chat with my boss on Monday – I think some posties have a trolley to push around rather than a bag which might be better – I'm keen to carry on as close to normal as I can for as long as possible.

I'm based in the Forest of Dean in Gloucestershire so…[Read more]

Hi Vicky, Colin and Eve for your comments and support.

My boss is being very supportive and so I will ask whether I can switch to something lighter until we know more.

Not starting treatment yet, but off for an MRI scan Thursday so should know a few more details then.

Mike