[mickeymooParticipant]

Hi my name is Mike where do I start,at the age of 19,27.09.89 I was passenger in a triumph spitfire no other car involed.Somehow driver lost control went up the kerb hit two cars in car park,one car hit a van then I took impact of a tree on my left the result,fractured skull,fractured left hip & ruputured bladder.
Still got 14 screws & plates in my hip & I'll always have prob with my bladder 'scar tissue'
Then at the good age of 40 had alot of trouble with my back at the bottom of my spine that bone on my right for two years.
After several blood tests I had some which were very low & would not budge,Dr was stuck got in touch with bloods at hospital then I was told I've got the conditoin myeloma june 2012,Ithought I had a bad back when
all along it was the caner attacking my bones.I'am doing MXI will be on stage 5 in 13 days & yes I've been knocked about with infections gout,
diarrhoea & warts which are being treated.
I've had to stay in hopital twice good chance of another visit very soon,
I've got pain beind left knee my left anckle swells as well as my foot but
I don't care as long as my Dr tells me I'm doing good:-)
Went to Queen Elizabeth Hospital B'ham saw Dr Cook 'nice guy' had good chat
I should finish chemo dec 9th then early next year my stem cells.
I would love to hear from anyone for a disussion on how things are going on.
Me & my girl friend are finding things difficult at minute good days & bad but 'The show must go on 😀 '

[JacquieParticipant]

Hi Mike

my partner was diagnosed with MM in July he is on the Myeloma X1 trial and he got the RCD his paraprotein levels are responding well. I notice you are from the West Midlands do you know that Myeloma UK are holding an info day on the 20 October 2012 at the Hilton hotel near NEC? you should meet others with same condiition and hear about the condition and trials etc

[tomParticipant]

Hi Mike

And the show must go on 😀
Good Luck on your treatment, I was told 2009 that I had MM, treatment was 5 courses of CDT then SCT in dec 09 now in remission and doing great, some times it was Uphill struggle but trust me well worth it all 😎
Oh and I am 57 years young 😎

Ask if you need to know owt.

Tom "Onwards and Upwards"

[PerkymiteParticipant]

Hi Mike, I always hesitate about using the word welcome because none of us want to be here really, but you know what I mean I am sure, so welcome to the Club;-)

You will find bags of information on this site have a good look around and the really good thing is it is up to date. Most of the stats and info you will read on the net are at best inaccurate at worst rubbish.

I was diagnosed in July 2009 like Tom, he is the good looking one. I broke my neck getting out of bed, yes true. I have the bog standard Myeloma G and have been through the Operations, radiotherapy, chemotherapy, Stem Cell harvest and Stem cell transplant (SCT). At present I am not on any medication for Myeloma, I am not in remission but I am ?stable? my Paraprotiens were hovering around 2.4 to 2.8 after my SCT (they were 33 when they ate my neck) but my last 3 monthly check revealed they had risen slightly to 3.5, nothing yet to worry about and I am not now due another check up until 21 Dec 12. Oh, yes I am 69

Kind regards ? vasbyte

David

[VickiParticipant]

Hello mike

My partner Colin was diagnosed age 56 with mm in October 2011. He had 7 cycles of revlimid, cyclophosphamide and dexamethasone. We felt our world had come to an end when Colin was diagnosed. However we've ploughed through it and Colin has only yesterday successfully completed his stem cell harvest and is due for transplant 22nd of this month. It hasn't been easy for him, or me in a different way but we have gritted our teeth and got so far.

Tell your girlfriend that this forum is helpful for supporters as well. I have found it a godsend, as there are still times when I can't believe we are where we are. But you will have a good team so make the most of them.

Good luck

Vicki and Colin x

[eveParticipant]

Hi Mike and Girlfriend

Another welcome to this exclusive site,were everybody is a patient,carer or friend,and we try to help each other out as much as possible,were here for you when you want to rant or need support.We have all been there before you and some are still here now.

Everything is do able,you must learn as much as you can,we are 2 years on from the start,I say we although it is my husband with myeloma,but it has been my journey as well,just different.

I noticed in your post about your leg have you had it checked out????for DVT,a good way to tell is measure both legs.if different measurements,pain swelling hot,worth checking,better save than sorry.

Mike I can only tell yes it does get you down,make plans,it takes a long time and you will get p—d off,but plan something everyday,you are not alone,good advice about going to info day,many people survive for lots of years,attitude of mind helps stay positive,plan ahead,reach your goals.Eve

[mhnevillParticipant]

Hi Mike

Just wanted to welcome you to the site which none of us wanted to know about!!

All best wishes for the Trial. Glad you have so much faith in your Dr. it does help.

Look forward to hearing good progress.

Mavis

[mickeymooParticipant]

Sorry for the late reply I've been off my feet due to the treatment but my Dr told me last thurs I'm doing relly good,but my body thinks differnt'gout' :-/ but I'll smile like I mean It with my partener.
I have just stsrted stage 5,1 more & then get my self ready next Jan/Feb to have my sc sorted.
I hope its all going well for you both,
Thanks for the reply

Mike
PS:I'm looking forward when I can meet people with the same condition I
would off loved to have been there @ the hotel/nec next time I'll be
there.

[mickeymooParticipant]

Hi Tom,
Sorry for late reply but the gouts not playing 🙂 I've been told
once I was told I had MM I had stage 3.
Did your SCT go ok Tom,I hope It all goes well when I start my
SCT,as long as all the trial drugs are working I don't mind I'll
do anything to help beat MM,

Cheers Mike.

[mickeymooParticipant]

Hi Dave,
Thanks for your reply I no when you have your check ups
I no It will all be good news your a strong guy.
I'm now on my stage 5,then no 6,then get my self ready
next Jan/Feb for my SCT.
Saw my Dr last thurs she told me I'm doing really well
but coz of the 'gout' my body does not agree I'll just grit
my teeth & carry on.
Wished I would of got details of this man & his lovley
wife when I was having my BS,He is 71 & found out he had
MM 8 years ago. M has came back I no he will ok like
you Dave got the T – shirt & still going strong,

Hope It all goes well for you Dave 🙂

Kind reguards Mike

[mickeymooParticipant]

Thanks for the reply I'm glad Colin has got through SCT,when I
finish my 6th cycle dec 9th I've got few weeks to get ready to
go through my SCT late Jan/start Feb.
Things would be a lot pain free without the gout saw my Dr last
thurs she told me I'm doyng really well like you said Viki we've
just got to keep on going the only way is up 🙂

You'll both be ok,we will beat this

Mikex

[mickeymooParticipant]

Thanks for your reply now on stage 5, then 6 next late Jan/late Feb
next year.
Like you said stay positive I agree 100% I'm so pleased for you both
shame MM was attacking my bones for 2 years which meant I had stage 3
I no we all get there,I no when I start my SCT I'll have some bad times
but I'll get through It for my 3 kids who I love & adore 😀

Thanx Mike

[mickeymooParticipant]

Hi Mavis,
Just to let you no I saw my brill Dr last thurs
yet again I'm doing so well with the trial drugs
its Mr GOUT if it was'nt for that I no things
might to a lot more pain free but I will take anythig
to help me & others.
Next Jan/Feb start my SCT I no there will not be many 🙂
but I'll do my best for my 3 children & partener,

Cheers Mike x

[tomParticipant]

Hi Mike

No problem re the reply time as and when thats what this group is all about 🙂

Yes My SCT went great (little uphill) and well worth it, would I do it again?? Too True I would now doing good and drug free, you my friend will be the same.

Good Luck

Tom "Onwards and Upwards"

[keznmelParticipant]

Hi Mike

I'm sorry that you are going through a tough time at the moment. It's my partner who is 39 who has Myeloma, and is also on the MXI trial, RCD. He is at the end of the 2nd cycle at the moment. I noticed that you go to the QE hospital in Birmingham. We live in Birmingham and Melvin will be having his SCT at the QE. What a fantastic hospital it reports to be!

How are things at the moment for you?

Best wishes Kerry.

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