[julierennieParticipant]

Hi Everyone

I was diagnosed with MM in 2014, had excellent treatment including SCT in 2015. Had a really good remission until beginning of this year when my lightchains are beginning to slowly go up. I’ve been taking 10mg Revlimid as a maintenance drug since 2015. Earlier last year, I started to develop severe diarhorea, I told my Myeloma Nurse and she said it was the Revlimid as they have found it starts to create problems further down the line. Last week, doctor told me that I would now be ceasing Revlimid as it was no longer effective. Since the start of this year, I’ve suffered with nausea, can’t seem to get on top of it and I was wondering if anyone had had nausea with Revlimid. I’m not sure if it is even the Revlimid causing it but tying to find the culprit. Thank you.

[MarybParticipant]

I’m taking oxycodone for pain relief 10 Mg morning and evening. I’m not really finding it effective and it’s also giving me a really fuzzy buzzy head which I’m struggling with. Has anyone had good or bad experience with this drug ?
Mary B

[dickbParticipant]

I’ve been taking Revlimid as a maintenance drug for the last 5 years and the Diarrhea has definitely got worse. Last year my Dr was so concerned he sent me for a Colonoscopy which came out as clear. As for Nausea, that is something I haven’t had as a side effect but if you are taking taking Pantoprazole it might be worth checking that out. I stopped using it because I felt it wasn’t actually doing anything and the Stomach Cramps actually got better afterwards.

[marty2019Participant]

I have been taking Revlimid for about two months so far. My response seems to be the opposite. I don’t have diarrhea when I’m taking it for the 21-day period. Rather, it seems to affect me on the seven rest days between cycles. Even then, it is relatively mild but it comes on quickly. Perhaps, I have not been on it long enough to experience more severe problems.

[Author]

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