[MothasParticipant]

Tuesday 1st will be a year since I had my stem cells back.

Well that’s gone very, very quickly.
A couple of weeks back I had my 3-monthly and all my bloods, light-chains, pp were normal.

For those about to have an SCT it’s eminently doable, I had a relatively easy time (stomach infection aside) and was back at work part time within a couple of months, and went full time after three. I feel pretty good, occasionally get tired but life has returned to a pretty normal routine. Long may it continue.

tom

[CarolsymonsParticipant]

Wow Tom I can’t believe a year has passed since your transplant! I am 5 months post transplant now and still in remission, although I haven’t got the latest blood results. I went back to work at 3 months on a phased return, now full time although school finishes on 18 July when I hope to return to Australia. I am, however, still waiting on the contract for the sale of my flat before I resign and book my one way ticket out of London. Good to hear you are doing so well. I too feel pretty good, still have occasional days when I feel really fatigued, but mostly life is back to normal. As you say long may it continue for both of us.

Carol

• This reply was modified 10 years, 4 months ago by  Carolsymons.

[rebeccaRParticipant]

Hi Tom, seems like yesterday when I was following your journey. Great news, hope you are celebrating.

Rebecca

[wifeofParticipant]

Congratulations on your anniversary.  My husband is about to start the SCT process and I have to say I’m finding it all a bit frightening.

You said that you returned to work part-time after two months, full time after three do you mind me asking what you do? My husband is self-employed mainly office based and I am worried that he is going to push himself to get back to soon and not allow himself the time needed to recover.

I would like to hear about your experience and how you found it fairly easy. I’m gearing myself up for a horrid experience and hoping that it’s not that bad really!

look forward to hearing your story

[PerkymiteParticipant]

That is real good news Tom – congratulations – Keep going buddy, just keep going.

All the best Carol with your move down under. We will wait for your first report of Myeloma in Aus.

Kindest regards to your both and vasbyte.

David

[MothasParticipant]

Thanks for the replies people sorry not to respond sooner, it’s a bit frenetic at work.

@wifeof – The going back to work conundrum. I’m an academic and responsible for a number of major research projects and I’m also the Director of our PhD programme. It means I’m pretty much on a minimum 6 day week but I do have flexibility in terms of how I order my hours.

In retrospect I went back too soon, but I did feel capable of work and it helped take me away from thinking about my predicament. Basically it made me feel normal again.

Everyone is different, but you need to discuss your progress with your specialist. I felt ready and they were happy about it.

The actual SCT process isn’t particularly pleasant but it wasn’t as bad as I thought it was going to be. I passed through it reasonably unscathed but again people respond very differently. Some people on here have had it tougher. The first few months back you will have to be careful with food and potential infections. Lots of healthy broths and you begin to build up your strength through gentle exercise. I used to walk around the house and up and down the stairs.

all the best

tom

[VickiParticipant]

Congratulations Tom, so glad to hear you are doing well. Always good to hear good news stories. Keep it up. Good luck with your move Carole and very best wishes to those with upcoming sct…..as Tom says it’s very doable

Vicki and Colin x

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