SCT – start date

This topic contains 2 replies, has 3 voices, and was last updated by  Vicki 11 years, 5 months ago.

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  • #102667

    Davehogan
    Participant

    Good morning all , I haven't posted on here as yet but I monitor the site daily for tips and help etc.
    I first felt back pain in January 2012 and thought it to be gym related , after 3 months my GP gave me anti inflamortory tablets,
    These controlled the pain whilst we were away in Turkey and then Wales.
    We returned from Wales at the end of August and all of a sudden I lost my appetite and began to feel quite sick.
    The GP told me it was a sinus issue and gave me inhalers !!!!
    Then after 3 weeks I had lost 2.5 stone in weight and I looked grey, the GP took a blood test in Sept , the same evening of the blood test I was called by the hospital and told not to take anymore tablets and to visit A&E in the morning.
    I was then admitted to the haermotology ward that day and told I had MM.
    I then spent 3 weeks in there on a drip…..
    Now 9 months on I've had 6 months of tablet chemo , a stem cell harvest , and I'm due in hospital for the sct on Monday 10th of June , I'm told by the consultant I'm 95% MM clear but the sct is the only way to reduce this .
    I've felt great over the last couple of months since the sct harvest even going back to the gym ( I never thought I would as I spent 3 months in a wheelchair due to foot drop, caused by the thalidomide ).
    Thank you for your forum it's really helped

    #102668

    Perkymite
    Participant

    Welcome Dave, As you have been monitoring us all you will no doubt appreciate we are a friendly bunch on here. Welcome to posting.

    If you search for a posting I did whilst undergoing my SCT in Nov/Dec 2010; I called it "Musings from ward 9" it might give you some insight into what you are about to go through.

    I look forward to hearing from you again

    Kindest regards- vasbyte

    David

    #102669

    Vicki
    Participant

    Hi Dave,

    Best if luck with your transplant. My Colin was diagnosed in October 2011 resulting in sct end October/early November 2012. He's now recovering, back at work in between full time and part time. It is a bit much for him I think but if he rested more bed be better I think.

    The sct was really daunting, Colin for going through it and me for worrying about it….however it's doable. Sorry your diagnosis was a bit rocky, but according to our Gp they only see a couple of cases in a lifetime of practising, but that seems odd as there are more and more people with it! The high dose chemo will whack that last 5 % certainly! Good on you for going to the gym too!

    Best of luck

    Vicki and Colin x

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