[willywinkiParticipant]

Thanks David, i will try that and take him a shake tomorrow afternoon. Dad has no appetite and says what he does tastes wrong.

Popped to see him for an hour today. He'd managed half a cheese sandwich and half a penguin biscuit. He was awake, although v tired, and just laid and listened to me and mum gabbing away….just like being at home LOL 🙂

All his bloods are down and his neut level is down to 0.65 today. Fingers crossed he's close the turning point.

xxxx

[PerkymiteParticipant]

Hi Vicki,

Do not forget it is [b]Complan[/b] not ordinary milk shakes, this will build his body up you might need to get it proscribed by the hospital although I think you can buy it at Boots.

If he can eat a Penguin his throat cannot be too bad at this stage. The bad taste is par for the course all of his taste buds have been destroyed, they will come back quite quickly, about 4 weeks from end of treatment if I remember correctly, and that is not guaranteed 😀 .

Kindest regards – vasbyte

David

[willywinkiParticipant]

Day + 12

Just got back from hospital, dad still not getting any better. His bloods are still down, and he's had 2 lots of platelets but they havn't come up yet. He's having blood transfusion for his iron levels. His neutrphils have been at no value for 6 days now…..shouldn't they start to be coming up now????

Can't help but worry that he isn't responding 🙁 I think i just need someone to tell me that this length of time to respond is normal…..

Thanks
Vicki

[PerkymiteParticipant]

If I remember correctly mine were down for at least 7 days, I cannot remember exactly how long but I know the Nurses voted me the most boring patient on the ward – because nothing was happening:-D

kindest regards – ~Vasbyte

David

[willywinkiParticipant]

Dad is coming home today 🙂 🙂 🙂

His blood levels have come up to hb 10.4 , wc 2.5, pl 24, neuts 1.91.

They wanted to send him home yesterday but it was just dropped on dad and he didn't feel ready for it. He's a bit apprehensive as he's still got sickness and diarhea.On the upside his taste buds are returning a little, so that might help with his appetite and he might even have a bit of my mums legendary xmas dinner. It's the best present we could have asked for this year.

Thanks for all your support throughhis SCT, it has really helped me keep am little bit of my remaining sanity. I'llkeep you posted with how he gets on.

MERRY CHRISTMAS xxxx

[Author]

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