[julianprotheroeParticipant]

I have recently been diagnosed with myeloma. I am on bone strengthener,chemo and steroids. Have just completed my third two-weekly cycle and would like to know if anyone is experiencing similar side effects – very swollen feet, blurred vision, unsteady and emotional

[annlynnParticipant]

hello . everything. your experiencing is the norm with these drugs one minute your in the debths ofv despair cant. sleep walking the floors i used to sitt writing notes about everything. even my funeral plans. then the next day i wanted to m a ke large family meals and buy them all gifts if treatment had lasted more than the six months id probley be stony broke . its all part of the treatment and it will get. better be sure of that. I had sct after my cdt treatment and at present im drug free which is a blessing hang on in. xx

[davidainsdaleParticipant]

Hi Julian. Sorry that you have had to join the Myeloma club.

Everyone seems to react differently but your symptoms sound very familiar to me. It is really tough whilst you are having the treatment, but for me most of the side effects like swollen ankles and puffy face do wear off in time once you finished. Even doing the basics can be quite challenging.

Looking back it seems funny now, but I was advised to put my feet up to help the swelling in my legs. So I sat in the garden reading a paper and even within half an hour got dreadful sun burn. Self inflicted but I was in agony for a month afterwards. I think the drugs make the skin more photosenstive.

There is plenty of advice available from Myeloma UK eg helpline and booklets if you are worried and of course you should hestitate to go back to your consultant or specialist nurse of you have queries, they are the experts.

Good luck on your Myeloma journey.

David S

[peterneoParticipant]

Hi Julian I am new to the myeloma web site but not the illness. As David s ( morning David) as stated all your symptom’s are common sorry you are not special just the same as us all lol.. I am at present on cycle 16 and 17 of a drug called revlimid.  I  have struggled to find shoes that fit and only recently after 3 years bought a pair of extra wide size 13 timberland boots (very generous sizes) oh my after wearing open sandals all that time I wanted to go to bed in them. The unsteady we call my wobbling , emotional I think I keep the Kleenex factory in business on my own,  but you will learn to control that when you want a mug of tea or coffee ect.. My wife is such a soft touch when a 6’2 24stone man turns on the waterworks. The blurred vision in my case was linked to the crying all the time. And David s you are right about the sunburn, as I have said I have been wearing open sandals for nearly 3 years and my skin colour on my feet would not be out of place on a man from the Bahamas never mind a man from stoke on trent.. Annlynn I wanted to give everything away also and my wife says I did. But I was fortunate enough to have a private pension that paid out in circumstances of illness even though I am under pensionable age (phew). As stated use your support team but I find the best source of information is people who can wear the t shirt as they say, and remember for warned is for armed. Don’t hesitate to ask for help. Take care and get In touch anytime Pete….

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