I didn’t have daratumumab during my induction (it wasn’t available then) but I haven’t heard of side effects coming off it. Generally myeloma patients feel increasingly physically well when they are in this period between induction treatment and stem cell transplant. Their myeloma has been knocked back to a low level, or is no longer evident, and they no longer have unwanted side effects from steroids, Thalidomide, Velcade or Daratumumab.
We all have anxiety about the impending stem cell transplant, but I remember this period as feeling particularly physically well. (I was lucky enough not to have bone lesions)
It gave me understanding of what “treatable” in myeloma means, I had a real improvement in quality of life, and although it took a while to return after SCT, it did, and for me it remains that way 4 years later.
