Stem cell transplant with kidney failure underway.

This topic contains 55 replies, has 11 voices, and was last updated by  brocho 12 years, 8 months ago.

Viewing 11 posts - 46 through 56 (of 56 total)
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  • #98363

    BADGER
    Participant

    Hi Mal and Bruce
    Sounds Hilarious I wish someone videod it, would make good viewing

    Keep well
    Love Jo x

    #98364

    Clucky
    Participant

    Hi all, I've been meaning to bring this up to date for some time now, but don't seem to have had the time.

    Bruce had his 'line' removed just after Christmas – his fistula (new plumbing for kidneys is working well).

    Then he had a bone marrow biopsy to see how well the stem cell transplant had worked (his third since being diagnosed). We had the result last Thursday – [u]no [/u][u]active myeloma![/u]

    We've started going swimming once a week, he'd like to get a bit fitter.

    The other bit of good news is, we're going to train for home dialysis. They say it should take about 3 months. NHS supplies the machine, chair, medication – they also pay for water & electric used. Sounds daft, but it is cheaper to give us everything and train us up, than for Bruce to have dialysis at the hospital or unit.

    It will make a huge difference to our lives. We've been told as long as he gets his 12 hours of dialysis in a week, we can decide when and for how long (3 x 4hrs or 6 x 2hrs – whatever, it'll be up to us). It means we can have the occasional late night at the pub now and not have to worry about getting to the unit at 7.30am. No more worrying about bad weather or if the car will start etc.

    Just waiting for things to be set up at the hospital now, then it's on with our nurses hats.

    We are planning to enjoy this lull in the storm as much as possible.

    love to everyone, just wanted to share our good news with you all.

    Mal & Bruce xx

    #98365

    Elizellen
    Participant

    What great news!

    I hope it won't be long till everything is in place to allow you to have more control over your schedule!

    Eliz
    XX
    X

    #98366

    Clucky
    Participant

    Thanks 🙂 🙂

    xx

    #98367

    BADGER
    Participant

    hello Mal and Bruce

    so glad everything has gone well for you its good news you can have the dialysis at home you will soon be rocking down the pub:-) 😀
    Love Jo

    #98368

    tom
    Participant

    Hi Mal And Bruce

    Well thats great news all round, getting to grips with your own life and not having to worry about getting to hospital.

    Like your thoughts re a few more cheeky late ones at the local :-D.

    Love and Hugs

    Tomm "Onwards and Upwards" xx

    #98370

    Clucky
    Participant

    Ta, Bruce is really pleased but I'm a bit nervous because I'll be doing the needling (Bruce still has tingling hands (and feet) from the thalidomide).

    xx

    #98369

    Clucky
    Participant

    Had a phone call last night and it's all systems go – we start our training next Tuesday (14th) – no jokes please 🙂

    xx

    PS It's Bruce's birthday today – he's 64 years old 🙂

    #98371

    mhnevill
    Participant

    Hi Mal and Bruce

    All best wishes for 14th and afterwards. A neighbour with home dialysis used to go on holiday and get the requirements delivered at the hotel so the world will be your oyster! Well, maybe not the world, but … !

    I do hope you get the hang of all the machinery very quickly.

    Love Mavis

    #98372

    Clucky
    Participant

    Ta, big day tomorrow.

    luv
    Mal & Bruce

    #98373

    brocho
    Participant

    Hi Mal and Bruce good luck for tomorrow hope all goes well love Bridget x

Viewing 11 posts - 46 through 56 (of 56 total)

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