[Anonymous]

Hi there all you lovely people just to let you know that Henry goes into hospital on 6 March for his stem cell transplant. We had a whole day at the hospital during his 'work up' day and had a look round the unit. However a few days later Henry developed a bad chest infection so on tuesday we were back at the Mac Unit – they thought he had a blood clot so he had to be admitted (on valentines day! )in order to be monitored and have a CAT scan, all of which was clear as he did indeed have a chest infection, so is on antibiotics now. I suppose its better to check every avenue but he didnt like being in hospital especially the food!! We are all set for 6 March and Ive made a list of everything we need to take. At oxford they have a flat for family to stay so im booked in. Henry is apprehensive about the transplant but I shall be with him every step of the way to hold his hand and give him all the support he needs to get through this treatment. He is also bothered about not being able to go to work for a while! I honestly dont know how he has managed to work the whole time he was on CDT…..I am so proud of him eventhough he has started re-arranging the dishwasher when i have already loaded it!! I read alot of your posts on the train to work in the morning and it is a great comfort to me…………thank you xxxx

[mhnevillParticipant]

Hi Sarah

Do hope Henry's infection is under control and that nothing stops the SCT going ahead. I can understand how he feels about Hospital food – I always loose weight when in hospital. It is one of the bonuses for me!

Hope SCT leads to a very long remission.

Best wishes.

Mavis

[PerkymiteParticipant]

Best of luck for the Transplant on the 6th I am sure everything will work out fine.

Kindest regards – vasbyte

David

[brochoParticipant]

Hi Sarah I am glad Henry has got the date for his sct and I hope they get his infection under control quickly . Having somewhere for you to stay will make it a lot easier for you too just make sure you look after yourself too Hope all goes well and it wont be too long before Henry gets a long remission and you can get back to some normality love Bridget

[li33iParticipant]

Hi there…just read your post. My dad has just been admitted to Birmingham to have a stem cell transplant too. We are all anxious for a positive outcome. He too has been on CDT for several months but it failed to get rid of the cells, only stopping the growth for a short while. He has a plasmacytoma in his sinus which has not responded to radiotherapy or CDT, so this is the next option. His own bone marrow cells are being used, but other than that I don't know much about what will happen. What sort of cancer does your husband have? I know how you feel, my dad also worked for most of his illness so far and is so concerned about when he can go back! I wish you and your husband well with his treatment..here's hoping there's a long remission for them both 😉 xx

[valbrewsterParticipant]

Hi,

Hope Henry is getting over his infection, and I wish well for the SCT. I wouldn't worry too much about the hospital food, after each of my SCT just didn't have much of an appetite but was nagged to drink water. I use to phone my hubby and give him a list of foods that I fancied, usually he got to the hospital and I had changed my mind, but on the whole there was always something that I could eat. I found it easier to eat little and often. Hope this helps. Remember to look after yourself as well. Take care.

Valerie

[Anonymous]

Hi Liz
Henry has IgA Kappa Myeloma. I do hope all goes well with your Dad.
best wishes
sarah

[Anonymous]

Hi Bridget
Henry's infection is under control with antibiotics. He went back to work on Friday! but his chest is alot better now. I am trying to look after myself too! and just focusing on keeping positive and upbeat – although some days it is a struggle (mainly when im at work!). thank you for you kind words. I will update once he is oxford. love sarah

[GillParticipant]

Hi Sarah

Just wanted to wish Henry the very best of luck My husband had 2 SCTs and had very little side effects (oh boy did I take some strange edibles to Kings College Hospital)

One tip When you get him home serve him tiny amounts of food on a side plate It doesn't overwhelm and he can always have seconds. Stephen craved home made Shepherds Pie topped with grated cheese and crunched up crisps to give it that lovely crunchy baked top. He could only manage a couple of spoonfuls but declared it was the best food he had ever had in his life.

And yes we do eat less basic meals than Shepherds Pie sometimes:-)

Anybody want my recipe for Chicken with Smoked bacon and lettuce? Our kids mock us as foodies and love to come to dinner. You can imagine the leg pulling that Stephen got for his "longing " for shepherds pie

Good luck Gill

[daveoParticipant]

Gill
Hope you do not mind me emailing you but I saw that your husband had 2 SCT's. I had one 5 years ago and I have now been told my pp level has come back (6) and wondered if I could have another one. I was in hospital for 3 weeks and it was about 3-4 months before I was back riding my bike and golfing.
How did your husband cope and how old was he at the time of the 2nd SCT? I am just 65 and my specialist seemed to imply that I was on the limit. I am still very active (golfing twice a week etc) and feel well.
I am worried that it will not go as well the 2nd time and I could be along time recovering. My specialist seems to say that the new treatments are as good without the risk and the 6 months out of action.
Hope you can find time to reply as any opinion will help greatly.
Dave

[GillParticipant]

Hi Dave

As you will know mm is a very unique cancer and no 2 people seem to react to either the illness or the treatment in the same way.

Stephen was diagnosed when he was 53 . Unfortunately, although his SCT harvest was really good, he got less than 18 months remission. There were plenty of stem cells left for his second transplant but it did not take. He is now on Revlimid and not doing too badly. He will be 57 next month. (I am 5 years older any other ladies out there got a Toy Boy:-)

I do wish you luck Dave Let us all know how it goes.

Kind regards Gill

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